– Hide quoted text — Show quoted text – {{{{{Sally}}}}}  This is wonderful news, except for the panic attacks.  I am soooo proud of you!  I knew you could do it.  I hope by now you’re feeling a lot better.  Thinking of you. Love, Di ((((Thanks Di!))))) Working feels good. How do you like your new home? Any news on the disability? Love, Sally Hi Sally, No news on the disability yet.  I’m going to call the woman in about 2 weeks to see what’s happening.  We like our new home.  Close to a lot of stores. Thanks for asking.  :-)  {{{{{Sally}}}}} Love, Di

Di, That is so nice that your home is in a convenient location. I had to adjust to the fact that my new place was not as close to some stores as I wished, but I admit that I’ve saved money having it this way. I hope you hear soon from Disability. They know how to drag things out, I guess they have lots of papers to push.. let us know if you hear anything when you call the lady, I’ll keep you in my prayers. Love, Sally — The charter is available at: http://readystump.algebra.com/~asapm

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Philip schreef – Hide quoted text — Show quoted text – You are doing *fantastic*, Sally! You are an inspiration. Philip Wow Philip, Thank you! What a nice thing to say.I’m just grateful that I’m able to do this. I hope I can do it more. I think I talked myself into thinking I couldn’t. I think Henry Ford said "Whether you think you can or think you can’t, you are right." How is Christie doing?? She is doing very well, thank you for your kind concern. She now has the right equipment for her and the ostomy hasn’t caused any problems anymore. She is back in *full swing* (which in her case means doing about twice what a normal human being is able of doing Are you still teaching? Yep. On an *as needed* basis. When the students have new work and want to talk to me (which they do, hehe) I turn up. I also will install the graduation exhibition. That would scare me. It scares the students  (No, it doesn’t but I felt it might be fun just saying that, something which with in retrospect was okay but not all that funny Philip

Philip, I am happy for Christie. I am sure that we are capable of adjusting to just about anything, really – outside of incessant pain. How wonderful she is running around and doing things, there’s not one reason in the world why she should not. I have a  cousin with a colostomy, and he’s got one of the best personalities of anyone you’d want to meet – he’s also paralyzed from the waist down. I think when people are faced with really difficult things like that, it shows what they are made of, whether they determine to feel sorry for themselves, or determine to enjoy life. It’s a choice we all make, anyway. I am very happy for her, please tell her so. You are a class act, and if you had any criticism on a piece of artwork, you’d know how to do it so that the student didn’t feel wounded; it would be constructive criticism, and most people don’t have a clue what that IS – it is a gift. You would inspire the students to do better. I bet you are good at teaching. I thought scaring the students was funny. but I have a mean streak, so, you can’t go by me. <eg Sally — The charter is available at: http://readystump.algebra.com/~asapm

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– Hide quoted text — Show quoted text – Guys, I’m too tired to write much, I just have to share something. This week was not only the first time that I have worked a full 8 hour day in about five or six years, but today, I worked 10 hours straight! No anxiety, not until I got home, anyway. I’m so exhausted.  The woman that was supposed to come in after my shift called in sick today, and I volunteered to stay. I had to drink almost an entire pot of coffee when I got home just to have the strength to come upstairs, I’m exhausted, and my anxiety is kicking in right now.. that is not due to the job, this is me. Most people get morning anxiety, I don’t even need medication most days until about 9 p.m. .. I have to go have a few panic attacks. I just wanted you all to know what I did this week..and the paychecks don’t suck,either. Love, Sally Sally, This is great! I’m sorry you have anxiety at night. Sometimes mine gets bad at night, too. I often get that derealization after a bad, or long, day. Come to think of it, mornings aren’t too bad for me, either, which is odd because I’m not a morning person. Anyway, I digress . I’m so glad you’re able to do this–I admire you so much for it. I’m afraid to even look for a job. (((((((((((((((((((Sally)))))))))))))))))))) Love, Dawn

Dawn, I’m afraid of looking for a job too, but I am in a situation where I must work, so maybe that is a good thing.. I only know the choice between working or say, living in a box on the streets of Columbus (it’s supposed to be 11F Sunday).. uh, I’m more afraid of the box. LOL. I’m not doing anything any of you wouldn’t be doing in the same situation, and probably not as well. I’m not a morning person either. I used to be, but that somehow changed over the years… I am sure that this evening anxiety is somehow tied to the end of the day and maybe thinking what I didn’t do (shoulding myself).. maybe. I don’t know. I only know this has been my cycle for a long time. On very bad nights, I wake up panicking. Love, Sally — The charter is available at: http://readystump.algebra.com/~asapm

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Great!  Congrats to you, Sally.  I can imagine how exhausted you must be. smiles, Elise

((((Thanks Rita))))) I was wiped out, that is for sure, but it was a good tired. I think I’m going to have to join you all in the excercise thread – I need to be in better shape!! Love, Sally — The charter is available at: http://readystump.algebra.com/~asapm

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highanxiety schreef: – Hide quoted text — Show quoted text – highanxiety schreef: Guys, I’m too tired to write much, I just have to share something. This week was not only the first time that I have worked a full 8 hour day in about five or six years, but today, I worked 10 hours straight! No anxiety, not until I got home, anyway. I’m so exhausted.  The woman that was supposed to come in after my shift called in sick today, and I volunteered to stay. I had to drink almost an entire pot of coffee when I got home just to have the strength to come upstairs, I’m exhausted, and my anxiety is kicking in right now.. that is not due to the job, this is me. Most people get morning anxiety, I don’t even need medication most days until about 9 p.m. .. I have to go have a few panic attacks. I just wanted you all to know what I did this week..and the paychecks don’t suck,either. You are doing *fantastic*, Sally! You are an inspiration. Philip Wow Philip, Thank you! What a nice thing to say.I’m just grateful that I’m able to do this. I hope I can do it more. I think I talked myself into thinking I couldn’t. I think Henry Ford said "Whether you think you can or think you can’t, you are right." How is Christie doing??

She is doing very well, thank you for your kind concern. She now has the right equipment for her and the ostomy hasn’t caused any problems anymore. She is back in *full swing* (which in her case means doing about twice what a normal human being is able of doing Are you still teaching?

Yep. On an *as needed* basis. When the students have new work and want to talk to me (which they do, hehe) I turn up. I also will install the graduation exhibition. That would scare me.

It scares the students  (No, it doesn’t but I felt it might be fun just saying that, something which with in retrospect was okay but not all that funny Philip Love, Sally

– The charter is available at: http://readystump.algebra.com/~asapm

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That’s so thoughtful of you to remember that. I’m doing fine with that… it healed on it’s own, slowly, over a period of some months. Just an inconvenience, but it did give me an appreciation for having the ability to walk!

Glad to hear that is all better, Sally!!!! Thanks for the encouragement How’s your depression and the watercolor class? Are you still taking it?

The watercolor class is still going on… and the depression comes and goes. Take care and be well! MikeH  . — The charter is available at: http://readystump.algebra.com/~asapm

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Guys, I’m too tired to write much, I just have to share something. This week was not only the first time that I have worked a full 8 hour day in about five or six years, but today, I worked 10 hours straight! No anxiety, not until I got home, anyway. I’m so exhausted.  The woman that was supposed to come in after my shift called in sick today, and I volunteered to stay. I had to drink almost an entire pot of coffee when I got home just to have the strength to come upstairs, I’m exhausted, and my anxiety is kicking in right now.. that is not due to the job, this is me. Most people get morning anxiety, I don’t even need medication most days until about 9 p.m. .. I have to go have a few panic attacks. I just wanted you all to know what I did this week..and the paychecks don’t suck,either.

Tony — The charter is available at: http://readystump.algebra.com/~asapm

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– Hide quoted text — Show quoted text – Guys, I’m too tired to write much, I just have to share something. This week was not only the first time that I have worked a full 8 hour day in about five or six years, but today, I worked 10 hours straight! No anxiety, not until I got home, anyway. I’m so exhausted.  The woman that was supposed to come in after my shift called in sick today, and I volunteered to stay. I had to drink almost an entire pot of coffee when I got home just to have the strength to come upstairs, I’m exhausted, and my anxiety is kicking in right now.. that is not due to the job, this is me. Most people get morning anxiety, I don’t even need medication most days until about 9 p.m. .. I have to go have a few panic attacks. I just wanted you all to know what I did this week..and the paychecks don’t suck,either. Love, Sally Sally, WOW!  A job.  You coped.  I understand the later anxiety.  If you can, keep it up.  It gives us all hope. Simon

Simon, Thank you! That is a flattering thought, that I’d give anyone hope – I like working. It helps my self esteem. Take care, Sally — The charter is available at: http://readystump.algebra.com/~asapm

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Sally, this is great!  Good for you.  Now, don’t exhaust yourself.  :-) xxoo Anne — The charter is available at: http://readystump.algebra.com/~asapm

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– Hide quoted text — Show quoted text – {{{{{Sally}}}}}  This is wonderful news, except for the panic attacks.  I am soooo proud of you!  I knew you could do it.  I hope by now you’re feeling a lot better.  Thinking of you. Love, Di ((((Thanks Di!))))) Working feels good. How do you like your new home? Any news on the disability? Love, Sally

Hi Sally, No news on the disability yet.  I’m going to call the woman in about 2 weeks to see what’s happening.  We like our new home.  Close to a lot of stores. Thanks for asking.  :-)  {{{{{Sally}}}}} Love, Di — The charter is available at: http://readystump.algebra.com/~asapm

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– Hide quoted text — Show quoted text – highanxiety schreef: Guys, I’m too tired to write much, I just have to share something. This week was not only the first time that I have worked a full 8 hour day in about five or six years, but today, I worked 10 hours straight! No anxiety, not until I got home, anyway. I’m so exhausted.  The woman that was supposed to come in after my shift called in sick today, and I volunteered to stay. I had to drink almost an entire pot of coffee when I got home just to have the strength to come upstairs, I’m exhausted, and my anxiety is kicking in right now.. that is not due to the job, this is me. Most people get morning anxiety, I don’t even need medication most days until about 9 p.m. .. I have to go have a few panic attacks. I just wanted you all to know what I did this week..and the paychecks don’t suck,either. You are doing *fantastic*, Sally! You are an inspiration. Philip

Wow Philip, Thank you! What a nice thing to say.I’m just grateful that I’m able to do this. I hope I can do it more. I think I talked myself into thinking I couldn’t. I think Henry Ford said "Whether you think you can or think you can’t, you are right." How is Christie doing?? Are you still teaching? That would scare me. Love, Sally — The charter is available at: http://readystump.algebra.com/~asapm

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think that’s too unusual – well, for us, anyway.  <g)  I’m so proud of you for getting through this week! kili –http://www.caringbridge.org/visit/kilikini

(((((Thank you Kili)))))))) tt is actually a relief to have a job, I’ve been looking for so long… and WE are proud of YOU for having the courage to keep going no matter what happens. That’s what we all have to do, but it’s more graphically evident in your case. You are thought about and prayed about often. Love, Sally — The charter is available at: http://readystump.algebra.com/~asapm

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I’m too tired to write much, I just have to share something. This week was not only the first time that I have worked a full 8 hour day in about five or six years, but today, I worked 10 hours straight!         Great, Sally!  I’m glad to hear it. Dennis

Thanks Dennis!! I’m glad to write it Sally — The charter is available at: http://readystump.algebra.com/~asapm

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– Hide quoted text — Show quoted text – You’re doing great, Sally!!  I’m glad you are liking the new job! How about your muscle disorder?  Has that resolved itself now? Wishing you continued success with the job! Hugs, MikeH Guys, I’m too tired to write much, I just have to share something. This week was not only the first time that I have worked a full 8 hour day in about five or six years, but today, I worked 10 hours straight! No anxiety, not until I got home, anyway. I’m so exhausted.  The woman that was supposed to come in after my shift called in sick today, and I volunteered to stay. I had to drink almost an entire pot of coffee when I got home just to have the strength to come upstairs, I’m exhausted, and my anxiety is kicking in right now.. that is not due to the job, this is me. Most people get morning anxiety, I don’t even need medication most days until about 9 p.m. .. I have to go have a few panic attacks. I just wanted you all to know what I did this week..and the paychecks don’t suck,either.

Hey Mike, That’s so thoughtful of you to remember that. I’m doing fine with that… it healed on it’s own, slowly, over a period of some months. Just an inconvenience, but it did give me an appreciation for having the ability to walk! Thanks for the encouragement How’s your depression and the watercolor class? Are you still taking it? Sally — The charter is available at: http://readystump.algebra.com/~asapm

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{{{{{Sally}}}}}  This is wonderful news, except for the panic attacks.  I am soooo proud of you!  I knew you could do it.  I hope by now you’re feeling a lot better.  Thinking of you. Love, Di

((((Thanks Di!))))) Working feels good. How do you like your new home? Any news on the disability? Love, Sally — The charter is available at: http://readystump.algebra.com/~asapm

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– Hide quoted text — Show quoted text – ::I’m too tired to write much, I just have to share something. This week ::was not only the first time that I have worked a full 8 hour day in ::about five or six years, but today, I worked 10 hours straight! No ::anxiety, not until I got home, anyway. I’m so exhausted.  The woman ::that was supposed to come in after my shift called in sick today, and ::I volunteered to stay. I had to drink almost an entire pot of coffee ::when I got home just to have the strength to come upstairs, I’m ::exhausted, and my anxiety is kicking in right now.. that is not due to ::the job, this is me. Most people get morning anxiety, I don’t even ::need medication most days until about 9 p.m. .. I have to go have a ::few panic attacks. I just wanted you all to know what I did this ::week..and the paychecks don’t suck,either. Dear Sally, Wonderful news! I’m so proud of you Have you ever thought about taking your benzo a few hours before your evening anxiety kicks in? Better to prevent the anxiety from even getting started. I don’t like to nag<g, but a pot of coffee in the evening cannot be good for your panic. I hope last night wasn’t too bad for you. (((((Sally)))))  .

You may get more contacts on the NY  UOA  Support Groups: http://www.uoa.org/chapters_states.htm#NEW_YORK

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Good afternoon, everyone. I am a medical research coordinator.  I am working with a client who is interested in conducting brief in-person interviews with ostomates in the New York City metro area. Each patient will be given an honoriarum of $100, in cash, as a thank-you for their time and trouble.  These interviews will last about 45 minutes. If you or anyone you know might be interested in participating, please contact me at 212.289.0087 or via email at p…@nyc.rr.com. I promise that this is not a sales presentation of any sort; this is simply OPINION research; there will be no testing of any pharmaceutical or other products, whatsoever.  From our experience, participants greatly enjoy participating in these projects, which are moderated by professional medical researchers. I can be reached, anytime, at 212.289.0087 or via email at p…@nyc.rr.com Thank you, in advance, for your help. Best regards, David Leonard Director pfc Medical Opinion Research 306 East 91st Street New York, NY 10128 Tel: 212.289.0087 Fax: 212.410.1382 Email: p…@nyc.rr.com

Response:

Does anyone know of a newsreader that will effectively filter all of these OT posts without removing posts with words like otter, spot etc. in the subject line?  These ot posts are getting ridiculous! BTW, sorry for this kind of OT post. James

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Does anyone know of a newsreader that will effectively filter all of these OT posts without removing posts with words like otter, spot etc. in the subject line?  These ot posts are getting ridiculous! BTW, sorry for this kind of OT post. James

You could google for help with filters. You can also look at the help files for your newsreader and you could go to newsgroups that discuss newsgroup filters and ask there.  :)

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Does anyone know of a newsreader that will effectively filter all of these OT posts without removing posts with words like otter, spot etc. in the subject line?  These ot posts are getting ridiculous! BTW, sorry for this kind of OT post. James

Well, if people use "OT:" instead of plain "OT" any filter should be able to use  ^ as something to grab on to without losing anything of value. More sophisticated filters may be able to not exclude "OT" unless there are spaces rather than other characters next to the letters, and may be able to distinguish caps from lower case. RTFM for your particular newsreader. Personally, I use the filter in my newsreader to bit-bucket *everything* by certain senders by nym, and by IP address for the most offensive shapeshifters. I also can bypass the filters and enjoy the noise if I choose to. Another option is to sign up for Poochie’s Yahoo spyware/spam outlet. There is allegedly none of the flaming that happens here in AGA, but I personally detest Yahoo groups because of the ad bombardment ( I’d rather filter the idiots here ), and because my junk-mail usually count soars for weeks after using a Yahoo group. To be fair to Poochie, the problem is endemic to all the Yahoo groups. YMMV Claude

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google groups are better n yahoo

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– Hide quoted text — Show quoted text – Does anyone know of a newsreader that will effectively filter all of these OT posts without removing posts with words like otter, spot etc. in the subject line?  These ot posts are getting ridiculous! BTW, sorry for this kind of OT post. James Well, if people use "OT:" instead of plain "OT" any filter should be able to use  ^ as something to grab on to without losing anything of value. More sophisticated filters may be able to not exclude "OT" unless there are spaces rather than other characters next to the letters, and may be able to distinguish caps from lower case. RTFM for your particular newsreader. Personally, I use the filter in my newsreader to bit-bucket *everything* by certain senders by nym, and by IP address for the most offensive shapeshifters. I also can bypass the filters and enjoy the noise if I choose to. Another option is to sign up for Poochie’s Yahoo spyware/spam outlet. There is allegedly none of the flaming that happens here in AGA, but I personally detest Yahoo groups because of the ad bombardment ( I’d rather filter the idiots here ), and because my junk-mail usually count soars for weeks after using a Yahoo group. To be fair to Poochie, the problem is endemic to all the Yahoo groups. YMMV Claude

Cleaning out your cookies and temporary internet files helps keep the spam down.  Not fool proof, but it helps some.  Also, running Ad-aware and Spybot (or similar) about once a week helps.  Finally, Mozilla Firefox is superior to other browsers in knocking down pop-ups and some other nasties.  I can’t tell you how many times I see it block doubleclick.net when I’m on eBay. All in all, putting up with trash is part of the environment.  In part, it’s what pays for our fun. As for filtering here, it takes more imagination and persistance than I can muster.  Beyond basic blocking techniques, I just put up with a lot of it. Still, that alone is a pretty good solution. I use the Yahoo group sometimes.  It not exactly and either-or situation. Regards, Phil

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google groups are better n yahoo

Especially for people whose off topic post rate is north of 90%.

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– Hide quoted text — Show quoted text – Does anyone know of a newsreader that will effectively filter all of these OT posts without removing posts with words like otter, spot etc. in the subject line?  These ot posts are getting ridiculous! BTW, sorry for this kind of OT post. James Well, if people use "OT:" instead of plain "OT" any filter should be able to use  ^ as something to grab on to without losing anything of value. More sophisticated filters may be able to not exclude "OT" unless there are spaces rather than other characters next to the letters, and may be able to distinguish caps from lower case. RTFM for your particular newsreader. Personally, I use the filter in my newsreader to bit-bucket *everything* by certain senders by nym, and by IP address for the most offensive shapeshifters. I also can bypass the filters and enjoy the noise if I choose to. Another option is to sign up for Poochie’s Yahoo spyware/spam outlet. There is allegedly none of the flaming that happens here in AGA, but I personally detest Yahoo groups because of the ad bombardment ( I’d rather filter the idiots here ), and because my junk-mail usually count soars for weeks after using a Yahoo group. To be fair to Poochie, the problem is endemic to all the Yahoo groups. YMMV Claude Cleaning out your cookies and temporary internet files helps keep the spam down.  Not fool proof, but it helps some.  Also, running Ad-aware and Spybot (or similar) about once a week helps.  Finally, Mozilla Firefox is superior to other browsers in knocking down pop-ups and some other nasties.  I can’t tell you how many times I see it block doubleclick.net when I’m on eBay. All in all, putting up with trash is part of the environment.  In part, it’s what pays for our fun.

Most of the time I use my Powerbook, so I personally don’t get infested… As for filtering here, it takes more imagination and persistance than I can muster.  Beyond basic blocking techniques, I just put up with a lot of it. Still, that alone is a pretty good solution.

I have about 15 names and/or IPs in the killfile. This spin thru the group showed 49 new messages since the last time earlier today and offed 29… I use the Yahoo group sometimes.  It not exactly and either-or situation. Regards,

I find it tough to image what might be discussed there that hasn’t been discussed here at least a dozen times, but I could be wrong. I made the error of giving a valid email address to Yahoo, so when I use it, my spam count rises. Sonic seems to catch most of it. I just notice the count in the daily Spam Assassin report I get. Claude

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<snip I use the Yahoo group sometimes.  It not exactly and either-or situation. Regards, I find it tough to image what might be discussed there that hasn’t been discussed here at least a dozen times, but I could be wrong. <snip Claude

I find there are a few knowledgeable guys over at the Yahoo group who will answer your questions without any abuse, no matter what they are, as long at it’s on topic.  Last time I built something, and was in need of some no nonsense support, they were very good about it.  AGA has done that for me, too, but sometimes there is just too much to weed through.  It’s not about whether it’s been convered before, but whether it will get covered today, even if it needs to be covered again.  One’s not better than the other, just different and it’s nice to have choices. Phil

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Does anyone know of a newsreader that will effectively filter all of these OT posts without removing posts with words like otter, spot etc. in the subject line?  These ot posts are getting ridiculous! BTW, sorry for this kind of OT post. James

I use Google Groups which is nice for a few reasons including that there are no messages to download unless you click into a thread.  The downside is that there is no killfile or any other filtering so you can’t just get rid of the kooks, OTers or spammers but I’ve been reading this group long enough to know whose messages I can just skip over. http://groups.google.com

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Does anyone know of a newsreader that will effectively filter all of these OT posts without removing posts with words like otter, spot etc. in the subject line?  These ot posts are getting ridiculous!

Try filtering on "OT:" with the colon included.

Response:

Does anyone know of a newsreader that will effectively filter all of these OT posts without removing posts with words like otter, spot etc. in the subject line?  These ot posts are getting ridiculous! Try filtering on "OT:" with the colon included.

but sometimes I don’t use the colon.

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Try filtering on "OT:" with the colon included. but sometimes I don’t use the colon

Okay, then try filtering on "OT Colostomy Bag" instead

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message In article

James Buhler Does anyone know of a newsreader that will

effectively filter all of these OT posts without removing posts with words

like otter, spot etc. in the – Hide quoted text — Show quoted text – subject line?  These ot posts are getting ridiculous! BTW, sorry for this kind of OT post. James Well, if people use "OT:" instead of plain "OT" any filter should be able to use  ^ as something to grab on to without losing anything of value. More sophisticated filters may be able to not exclude "OT" unless there are spaces rather than other characters next to the letters, and may be able to distinguish caps from lower case. RTFM for your particular newsreader. Personally, I use the filter in my newsreader to bit-bucket *everything* by certain senders by nym, and by IP address for the most offensive shapeshifters. I also can bypass the filters and enjoy the noise if I choose to. Another option is to sign up for Poochie’s Yahoo spyware/spam outlet. There is allegedly none of the flaming that happens here in AGA, but I personally detest Yahoo groups because of the ad bombardment ( I’d rather filter the idiots here ), and because my junk-mail usually count soars for weeks after using a Yahoo group. To be fair to Poochie, the problem is endemic to all the Yahoo groups. YMMV Claude Cleaning out your cookies and temporary internet

files helps keep the spam down.  Not fool proof, but it helps some.  Also,

running Ad-aware and Spybot (or similar) about once a week helps.  Finally,

Mozilla Firefox is superior to other browsers in knocking down pop-ups and

some other nasties.  I can’t tell you how many times I see it block

doubleclick.net when I’m on eBay. All in all, putting up with trash is part of the

environment.  In part, it’s what pays for our fun. As for filtering here, it takes more imagination

and persistance than I can muster.  Beyond basic blocking techniques, I

just put up with a lot of it. Still, that alone is a pretty good solution. I use the Yahoo group sometimes.  It not exactly

and either-or situation. Regards, Phil

Just curious, you mean you can’t interpret the nature of a post or thread based on its subject, then simply pass on by without reading the post as you search for something more of interest?

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Does anyone know of a newsreader that will effectively filter all of these OT posts without removing posts with words like otter, spot etc. in the subject line?  These ot posts are getting ridiculous! BTW, sorry for this kind of OT post. James

You can pretty much filter out the usual 6 suspects. They post 95% OT bullshit, almost always pasted from somewhere else, and little or no amp, guitar, barbecue, chili recipe or beer talk that anyone might want to read. It will take you all of about 20 minutes to round them up, put ‘em in a killfile and re-sort your newsgroup articles.

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- Hide quoted text — Show quoted text – Does anyone know of a newsreader that will effectively filter all of these OT posts without removing posts with words like otter, spot etc. in the subject line?  These ot posts are getting ridiculous! BTW, sorry for this kind of OT post. James You can pretty much filter out the usual 6 suspects. They post 95% OT bullshit, almost always pasted from somewhere else, and little or no amp, guitar, barbecue, chili recipe or beer talk that anyone might want to read. It will take you all of about 20 minutes to round them up, put ‘em in a killfile and re-sort your newsgroup articles.

Agreed. And once you get those *plonks* in place… it’s a less noisy. M-soft  OE can filter pretty well… Mozilla Thunderbird *seems* to.. but I haven’t found out yet how to zap the already downloaded headers with new filters like you can in OE.  In OE one can put in a filter and "apply" it to the existing list of headers. It seems that Thunderbird must be shut down and restarted to enact any new filter. Further, any "old" headers won’t be filtered, just *new* ones… (???)

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if you want info about BBQ you should go here http://www.southernfoodways.com/oral_history/tnbbq/M00_biblio.shtml

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Rob Hooper wrote: > Dan, > Yes, I always have to specify ‘no time release’ to my regular doc as he > always forgets. Then after he writes the script and I am about to leave > I always ask him agian if he is sure it is not time release. I take he > liquid antibiotics or non time release ones as the others are not around > for long enough.

Thanks – same here, we’re awaiting results of another culture, which, hopefully, if still positive, to be followed by a non-time-release product,                                 Dan Wenz

Response:

We ostomates have also been warned about "enteric coated" pills, because of their slower dissolving. Our illeostomies have a "speedy" in-out system. Mine is usually (maximim) 4 hours from eating to output in the pouch     Except really chewed peanuts come out in 4 hrs, but some settle into my intestine low spots? and take 2 days to come out.     I drink huge amounts of liquid so I prevent peanut blockages. No more ER trips now, due to peanuts.     Drink Lots of water with them. Best— Ron Dan Wenz <djw…@comcast.net> wrote in message

news:7bKdnQTIM9IKWWHfRVn-gQ@comcast.com… – Hide quoted text — Show quoted text -> Rob Hooper wrote: > > Dan, > > Yes, I always have to specify ‘no time release’ to my regular doc as he > > always forgets. Then after he writes the script and I am about to leave > > I always ask him agian if he is sure it is not time release. I take he > > liquid antibiotics or non time release ones as the others are not around > > for long enough. > Thanks – same here, we’re awaiting results of another culture, which, > hopefully, if still positive, to be followed by a non-time-release product, > Dan Wenz

Response:

My wife has a Kock pouch continent ileostomy and was recently given an antibiotic medication for a bladder infection. I/We’ve been aware of the possibility that any time-release medication may not be resident for a long enough time to be fully effective for an ostimate. We’re in the process of having a second culture performed after a regimen of 7 days on the generic equivalent of Macrobid. She still has some symptoms, and we were wondering whether the medication was a time-release formulation. She had mentioned (warned?)to the doctor that she had the iliostomy, but after the symptoms seemed to persist, we called the pharmacist and double-checked on the ‘Net, and, sure enough, the formulation IS a time-release type! So the question, have any of you folks looked into the medications you take for whatever reason and run into the above (possible) problem? I do see that the antibiotic has a liquid formulation so we’ll see what the culture shows and work with the MD to find a "happy" solution to the   problem infection.

Response:

Dan, Yes, I always have to specify ‘no time release’ to my regular doc as he always forgets. Then after he writes the script and I am about to leave I always ask him agian if he is sure it is not time release. I take he liquid antibiotics or non time release ones as the others are not around for long enough. Rob – Hide quoted text — Show quoted text -Dan Wenz wrote: > My wife has a Kock pouch continent ileostomy and was recently given an > antibiotic medication for a bladder infection. I/We’ve been aware of the > possibility that any time-release medication may not be resident for a > long enough time to be fully effective for an ostimate. We’re in the > process of having a second culture performed after a regimen of 7 days > on the generic equivalent of Macrobid. She still has some symptoms, and > we were wondering whether the medication was a time-release formulation. > She had mentioned (warned?)to the doctor that she had the iliostomy, but > after the symptoms seemed to persist, we called the pharmacist and > double-checked on the ‘Net, and, sure enough, the formulation IS a > time-release type! > So the question, have any of you folks looked into the medications you > take for whatever reason and run into the above (possible) problem? > I do see that the antibiotic has a liquid formulation so we’ll see what > the culture shows and work with the MD to find a "happy" solution to the >  problem infection.

Response:

Wow, how did they find the cancer? Just the PSA test? Bev

– Hide quoted text — Show quoted text – Has anyone in the group had open or laparoscopic PC surgery who was also an ileostomate?  I had a total proctocolectomy (removal of entire colon, rectum, and rectal stump) in 1999 as a consequence of ulcerative colitis.  I have a stoma 2" below my belt line and 3" to the right of my navel, with the requisite adhesive collection pouch.  The surgery was performed laparoscopically in Chicago with excellent success. I am seriously considering laparoscopic surgery again (da Vinci?) for the PC but don’t want to risk problems with the re-routed plumbing I now have.  I’m not even sure I am a candidate for this kind of surgery (robotic assist or otherwise);  I will be discussing this with my uro in two weeks. I would certainly like to correspond with anyone who may have had a pre-existing ostomy (urostomy, colostomy, or ileostomy) at the time of his PC surgery. If you are out there, please post or email me. btw, I’m 53, PSA=2.5 to 15 in last 12 months, free PSA=1 ng/ml, getting an MRI next week (no rectum, so no DRE or ultrasound) in preparation for biopsy.  At this point I’m actively self-educating (this group is a tremendous resource) to try to be on top of whatever lies ahead. Thanks, Jim in Boston

Response:

You’re going about it the right way.  One nice thing about PCa is that it gives you plenty of time to consider the options. — Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA  .1  .1  .1  .27  .37  .75 PSA  .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA  .07 .05 .06 .05 non Illegitimi carborundum

– Hide quoted text — Show quoted text – Thanks for the replies.  Sorry, I didn’t mean to appear to jump the gun;  PC is not confirmed.    I’m just trying to get as much information as I can going into the upcoming testing, since, without a rectum and with a stoma placement near the potential operating field, the materials that I am reading about diagnostic procedures and surgery don’t seem to fit well (no pun intended). If it turns out that the biopsy is positive, I will be in touch with the Dr. in Chicago who performed my earlier proctocolectomy.  That will probably be my first "2nd opinion". Thanks again.  Jim

Response:

Jim…all the best to you. I would think that after talking to your uro…you would want to talk to the docs in Chicago who did the original surgeries. They would have some ideas on your questions, I’m sure. I’m in Chicago and if I can help in any way (communications etc.)…I will. Good luck, Ron B.

Response:

Thanks for the replies.  Sorry, I didn’t mean to appear to jump the gun;  PC is not confirmed.    I’m just trying to get as much information as I can going into the upcoming testing, since, without a rectum and with a stoma placement near the potential operating field, the materials that I am reading about diagnostic procedures and surgery don’t seem to fit well (no pun intended). If it turns out that the biopsy is positive, I will be in touch with the Dr. in Chicago who performed my earlier proctocolectomy.  That will probably be my first "2nd opinion". Thanks again.  Jim

Response:

They haven’t, Bev.  He only knows that his PSA went up, is fPSA is down and he has an appointment with a uro. —

– Hide quoted text — Show quoted text – Wow, how did they find the cancer? Just the PSA test? Bev Has anyone in the group had open or laparoscopic PC surgery who was also an ileostomate?  I had a total proctocolectomy (removal of entire colon, rectum, and rectal stump) in 1999 as a consequence of ulcerative colitis.  I have a stoma 2" below my belt line and 3" to the right of my navel, with the requisite adhesive collection pouch.  The surgery was performed laparoscopically in Chicago with excellent success. I am seriously considering laparoscopic surgery again (da Vinci?) for the PC but don’t want to risk problems with the re-routed plumbing I now have.  I’m not even sure I am a candidate for this kind of surgery (robotic assist or otherwise);  I will be discussing this with my uro in two weeks. I would certainly like to correspond with anyone who may have had a pre-existing ostomy (urostomy, colostomy, or ileostomy) at the time of his PC surgery. If you are out there, please post or email me. btw, I’m 53, PSA=2.5 to 15 in last 12 months, free PSA=1 ng/ml, getting an MRI next week (no rectum, so no DRE or ultrasound) in preparation for biopsy.  At this point I’m actively self-educating (this group is a tremendous resource) to try to be on top of whatever lies ahead. Thanks, Jim in Boston

Response:

Has anyone in the group had open or laparoscopic PC surgery who was also an ileostomate?  I had a total proctocolectomy (removal of entire colon, rectum, and rectal stump) in 1999 as a consequence of ulcerative colitis.  I have a stoma 2" below my belt line and 3" to the right of my navel, with the requisite adhesive collection pouch.  The surgery was performed laparoscopically in Chicago with excellent success. I am seriously considering laparoscopic surgery again (da Vinci?) for the PC but don’t want to risk problems with the re-routed plumbing I now have.  I’m not even sure I am a candidate for this kind of surgery (robotic assist or otherwise);  I will be discussing this with my uro in two weeks. I would certainly like to correspond with anyone who may have had a pre-existing ostomy (urostomy, colostomy, or ileostomy) at the time of his PC surgery. If you are out there, please post or email me. btw, I’m 53, PSA=2.5 to 15 in last 12 months, free PSA=1 ng/ml, getting an MRI next week (no rectum, so no DRE or ultrasound) in preparation for biopsy.  At this point I’m actively self-educating (this group is a tremendous resource) to try to be on top of whatever lies ahead. Thanks, Jim in Boston

Response:

- Hide quoted text — Show quoted text -Mr Fed UP wrote: > Mother had a reaction to the wafers from Hollister too. > After so much misery the ETN finally told us about Stomahesive Protective > Powder Convatec mfg > This was a help for her. She still uses the hollister 2 piece and has a > regular 3 days with no problems now > from after the first "leaks"  FLOODS.  She is bedfast now and near the end > of her struggle with cancer but > you might try the powder. She puts it on around the stoma and then puts on > the skin prep around where the > paper tape of the flange goes. > My help page donation for anyone: > http://personal.atl.bellsouth.net/m/e/metacalv/Ostomy.html > Good luck every one.

Sorry to hear about your mother’s problems, and she is in my prayers. I think much of the problem I had with the Hollister was in the basic design.  The "floating" flange was more of a "funneling" flange and it poured everything toward the one area I did NOT need it at. So far, the Convatec is helping me heal. Thanks. ;-Deano

Response:

I will add that I do not get long term wear from any system, so I do not use the two piece systems. I stick with the one piece because by the time I would be replacing the pouch I need to change the whole thing anyway. There is less to go wrong with a one piece and they are lower profile on the body. I use the hollister and when I have skin problems I use Eakin seals for a few changes then go back to just the appliance with a bit of Coloplast strip paste molded around the stoma. Rob

Response:

Deano, Sorry for the very late response.  With so little discussion in the group I’ve not read any posting for quite a while. I’m 6′1" and 233 myself so there might be some similarities — Who Knows? I rotate between the three major suppliers and have tracked price/wear/performance for every pouch I’ve used since my operation. Based on my cost from my supplier here is my analysis for only the two-piece systems: Coloplast Assura, number worn (17), cost/day ($1.55), avg wear (6 days), ConvaTec Natura Stomahesive number worn (24), cost/day ($1.90), avg wear (7.1 days), Hollister New Image number worn (77), cost/day ($1.51), avg wear (8.1 days), I used Eakin Seals with every change and clearly have a bias for the Hollister floating flange because I can get a confident seal.  On the other hand there is a reason I rotate; none of these systems have it all together.  I wish I could one system that combines the best features of each of them. BTW, several posters (and my ET) have warned about having the hernia repaired.  Something that concerns me as mine seems to grow each year; it has been three years. Ciao, Tino

Response:

I too had terrible skin reactions to tape.  I simply couldn’t wear the Hollister floating flange system.  The ET nurse I spoke with at Hollister (when I called for samples) told me that the floating flange allows you to get your fingers between the flange and the pouch to clamp it, unlike other systems with a stationary flange that require you to press pouch and flange against your abdomen.  I had the worst leak ever with this Hollister appliance.  That is, it seemed properly sealed, but there was a little track under the tape and wafer that I couldn’t see.  I woke up that night covered up to my neck in you-know-what.  So I went back to the Coloplast Assura extra durable two-piece.  I like their wide-mouth velcro-seal drainable pouch.  The really nice thing about this particular wafer is that it’s *round* and smaller than other brands’ big square ones.  Coloplast manages this because they use a different, stronger adhesive on the wafer.  I have had terrible skin reactions to most adhesives, but this one didn’t bother me a bit, and there was less skin area exposed to the adhesive, too.  Because the wafer is round (and so was my belly, as my ileostomy had herniated), I managed to get it on with no tracks forming, and thus no leaks, ever.  I only ever got about three days wear though, simply because my stomach acid would eat away at the paste and ultimately my skin, in one particular area. (I never did learn how to add paste once the wafer was in place.)  I don’t believe my short wear-time was due to the wafer, because I got even less wear with other brands’ systems.  Coloplast’s extra durable wafer also comes in a convex version, in both pre-cut and cut-to-fit.  Coloplast’s representatives were very nice on the phone and sent me tons of samples. They were by far the most generous and helpful of all the companies I contacted.  They even called me once to see how I was doing.  Another thing that’s different about this particular wafer, is that they say you should not use barrier wipes, as it will prevent the extr-durable adhesive from sticking properly.  I found this to be true.  Every now and then I’d also use the adhesive remover wipes, and even though I *thought* I washed it off well, my next wafer would not stick as well.  So I finally gave up using any of these wipes.  I never had a problem getting the wafer to stick, it never ate my skin, and there’s NO TAPE.  If you haven’t tried this system, I urge you to call Coloplast and have them send you some samples. Hope this helps, Margaret "Deano" <d…@cogeco.ca> wrote in message

news:4hvre.650$Df.220@read2.cgocable.net… – Hide quoted text — Show quoted text -> Update:  After three changes with the Hollister appliance, I am finding > that my skin is reacting badly to the flange and tape.  As well, the area > that had been irritated all along is getting much worse.  It seems to me > that the ET nurse was trying to contain an area of semi-intact SKIN inside > the cutout of the flange.  Needless to say, while stomas do not have nerve > endings that feel pain, areas of SKIN do!! >   With little chance of actually SEEING a surgeon within the next years, I > am going back to the Convatec Natura Durahesive flange that actually gives > me SOME relief.  While I am disappointed that I am no longer getting a > weeks worth of wear out of a flange, the four or five days that I DO get > HAS to be MUCH better than the ONE day I got from the Hollister. >   One more question: what, exactly is the purpose of the "floating flange" > on the Hollister appliances?  I can see from an engineering standpoint > that is allows the pouch to float freely of the peristomal skin area. > But, the nice little accordion ALSO makes a great little TROUGH for > accumulating fluids RIGHT at the BASE of the stoma. (Unless of course, you > spend the day standing on your HEAD) Even with my stoma being proud of the > abdomen by almost an inch, clothing tends to push it back into the flange. >    Lastly, I’d like to thank all of those who wrote in support of my > frantic calls.  If anyone CAN contact Hollister, you can thank them for > preventing anyone from Canada ANY direct contact with them.  And it would > be NICE if Convatec would STOP increasing their prices.  I am paying OVER > $15.00 CDN PER FLANGE, which is covered neither by ADP or by HMO in any > sense of the word.  ;-Deano

Response:

Mother had a reaction to the wafers from Hollister too. After so much misery the ETN finally told us about Stomahesive Protective Powder Convatec mfg This was a help for her. She still uses the hollister 2 piece and has a regular 3 days with no problems now from after the first "leaks"  FLOODS.  She is bedfast now and near the end of her struggle with cancer but you might try the powder. She puts it on around the stoma and then puts on the skin prep around where the paper tape of the flange goes. My help page donation for anyone: http://personal.atl.bellsouth.net/m/e/metacalv/Ostomy.html Good luck every one. — Gary Lee Calvert emailto: metac…@nospammy.bellsouth.net "Margaret Wilson" <twokat…@nospam.msn.com> wrote in message

news:d8n0a30289r@news3.newsguy.com… – Hide quoted text — Show quoted text ->I too had terrible skin reactions to tape.  I simply couldn’t wear the >Hollister floating flange system.  The ET nurse I spoke with at Hollister >(when I called for samples) told me that the floating flange allows you to >get your fingers between the flange and the pouch to clamp it, unlike other >systems with a stationary flange that require you to press pouch and flange >against your abdomen.  I had the worst leak ever with this Hollister >appliance.  That is, it seemed properly sealed, but there was a little >track under the tape and wafer that I couldn’t see.  I woke up that night >covered up to my neck in you-know-what.  So I went back to the Coloplast >Assura extra durable two-piece.  I like their wide-mouth velcro-seal >drainable pouch.  The really nice thing about this particular wafer is that >it’s *round* and smaller than other brands’ big square ones.  Coloplast >manages this because they use a different, stronger adhesive on the wafer. >I have had terrible skin reactions to most adhesives, but this one didn’t >bother me a bit, and there was less skin area exposed to the adhesive, too. >Because the wafer is round (and so was my belly, as my ileostomy had >herniated), I managed to get it on with no tracks forming, and thus no >leaks, ever.  I only ever got about three days wear though, simply because >my stomach acid would eat away at the paste and ultimately my skin, in one >particular area. (I never did learn how to add paste once the wafer was in >place.)  I don’t believe my short wear-time was due to the wafer, because I >got even less wear with other brands’ systems.  Coloplast’s extra durable >wafer also comes in a convex version, in both pre-cut and cut-to-fit. >Coloplast’s representatives were very nice on the phone and sent me tons of >samples. They were by far the most generous and helpful of all the >companies I contacted.  They even called me once to see how I was doing. >Another thing that’s different about this particular wafer, is that they >say you should not use barrier wipes, as it will prevent the extr-durable >adhesive from sticking properly.  I found this to be true.  Every now and >then I’d also use the adhesive remover wipes, and even though I *thought* I >washed it off well, my next wafer would not stick as well.  So I finally >gave up using any of these wipes.  I never had a problem getting the wafer >to stick, it never ate my skin, and there’s NO TAPE.  If you haven’t tried >this system, I urge you to call Coloplast and have them send you some >samples. > Hope this helps, > Margaret > "Deano" <d…@cogeco.ca> wrote in message > news:4hvre.650$Df.220@read2.cgocable.net… >> Update:  After three changes with the Hollister appliance, I am finding >> that my skin is reacting badly to the flange and tape.  As well, the area >> that had been irritated all along is getting much worse.  It seems to me >> that the ET nurse was trying to contain an area of semi-intact SKIN >> inside the cutout of the flange.  Needless to say, while stomas do not >> have nerve endings that feel pain, areas of SKIN do!! >>   With little chance of actually SEEING a surgeon within the next years, >> I am going back to the Convatec Natura Durahesive flange that actually >> gives me SOME relief.  While I am disappointed that I am no longer >> getting a weeks worth of wear out of a flange, the four or five days that >> I DO get HAS to be MUCH better than the ONE day I got from the Hollister. >>   One more question: what, exactly is the purpose of the "floating >> flange" on the Hollister appliances?  I can see from an engineering >> standpoint that is allows the pouch to float freely of the peristomal >> skin area. But, the nice little accordion ALSO makes a great little >> TROUGH for accumulating fluids RIGHT at the BASE of the stoma. (Unless of >> course, you spend the day standing on your HEAD) Even with my stoma being >> proud of the abdomen by almost an inch, clothing tends to push it back >> into the flange. >>    Lastly, I’d like to thank all of those who wrote in support of my >> frantic calls.  If anyone CAN contact Hollister, you can thank them for >> preventing anyone from Canada ANY direct contact with them.  And it would >> be NICE if Convatec would STOP increasing their prices.  I am paying OVER >> $15.00 CDN PER FLANGE, which is covered neither by ADP or by HMO in any >> sense of the word.  ;-Deano

Response:

Hello Deano;  You might get more infoi about the Hollister Appliances at this site: http://www.hollister.com/     800-323-4060      Call the toll free number for Customer Care. Also you might want to look for a Certified Colorectal Surgeon at ont of the sites below to get an opinion about Hernia Repair: Locate a Certified Colorectal Surgeon near you: http://www.abcrs.org/ http://www.fascrs.org/ Good luck and be well, Charles in TX

Response:

Deano, Hollister does make beige versions of all of their products. I think the Hollister and Convatec prices are about the same. I get my Hollister products online as I pay for all my oxn supplies. If I had a hernia I would get it repaired by a good surgeon, I don’t see any reason to suffer with it , but that is just me. Rob – Hide quoted text — Show quoted text -Deano wrote: >   I just had a very rude awakening that the severe hernia that I have > around my stoma has caused me to need a MUCH larger appliance.  I have > always used, and been most comfortable with, Convatec Natura flanges and > pouches. I have tired Hollister in the past, but I do not like the feel > of the bags or the "floaty flange" thingy.  But, apparently, Convatec > does not make any appliances larger than the 70mm that I HAD been using. > (the ET in the ER put a 104mm appliance on me)  Now, I am a big guy, 6ft > 230 lbs, but I could almost put my LEG through this diameter flange!! I > am scared, concerned, angry, and in need of some advice from current > Hollister users.  Do they offer a "tan" pouch?  Anything other than > plain plastic bags?  What kind of wear time?  Do they have something > similar to Durahesive?  More or less $$$$ than Convatec??  Thanks in > advance. ;-Deano

Response:

Update:  After three changes with the Hollister appliance, I am finding that my skin is reacting badly to the flange and tape.  As well, the area that had been irritated all along is getting much worse.  It seems to me that the ET nurse was trying to contain an area of semi-intact SKIN inside the cutout of the flange.  Needless to say, while stomas do not have nerve endings that feel pain, areas of SKIN do!!    With little chance of actually SEEING a surgeon within the next years, I am going back to the Convatec Natura Durahesive flange that actually gives me SOME relief.  While I am disappointed that I am no longer getting a weeks worth of wear out of a flange, the four or five days that I DO get HAS to be MUCH better than the ONE day I got from the Hollister.    One more question: what, exactly is the purpose of the "floating flange" on the Hollister appliances?  I can see from an engineering standpoint that is allows the pouch to float freely of the peristomal skin area.  But, the nice little accordion ALSO makes a great little TROUGH for accumulating fluids RIGHT at the BASE of the stoma. (Unless of course, you spend the day standing on your HEAD) Even with my stoma being proud of the abdomen by almost an inch, clothing tends to push it back into the flange.     Lastly, I’d like to thank all of those who wrote in support of my frantic calls.  If anyone CAN contact Hollister, you can thank them for preventing anyone from Canada ANY direct contact with them.  And it would be NICE if Convatec would STOP increasing their prices.  I am paying OVER $15.00 CDN PER FLANGE, which is covered neither by ADP or by HMO in any sense of the word.  ;-Deano

Response:

I’m sorry that my response is not going to be of help.  I had what we hoped would be a temporary ileostomy on 12/26/2004.  It was an emergency, after my October bowel resection leaked and two repairs failed.  Anyway, the doc did a loop ileostomy, and during the ensuing months I kept having to cut my wafer larger.  As my infection did not go away, any my surgeon didn’t seem concerned that I’d been on IV antibiotics for *four* months, I got a new surgeon who operated on me on 5/20.  I had to see an ET nurse to get "marked" in case I needed to keep the ostomy.  Anyway, my ostomy had started to hurt and seemed to be getting bigger and bigger.  The ET nurse told me it was herniated and prolapsing, which my surgeon confirmed.  I went into surgery expecting to come out with a permanent ileostomy.  But my new surgeon worked a miracle.  He cleaned out the abscesses, resected my original (leaking) resection and "took down" my ostomy.  As the other surgeon had placed it a good foot above the original resection, my new surgeon was able to give me back close to a foot of small bowel.  It’s still too soon to say if I’ll have complications or not, but everything looks good so far.  Those five awful months that I suffered with a bad ostomy were terrible.  If I ever have to have one again, I will definitely go to my new surgeon, and *not* to the bozos I got the first time around.  Anyway, I know surgery is not pleasant, but why don’t you get the hernia fixed?  Mine was painful and that along with the prolapsing made the ostomy show through my clothes.  Several times I opened the fridge door and "whacked" it good.  And wow, did that hurt.  The only appliance that worked for me was Coloplast’s two piece Assura 60mm extra durable wafer and their wide-mouth velcro-closure pouch.  It’s a good thing I had the surgery when I did, because that 60mm was soon to be not big enough.  I tried lots of appliances from Coloplast, Hollister and Convatec.  Although Convatec was a little stingy with their samples, they finally did send some.  Both Coloplast and Hollister were more forthcoming, but Coloplast was extremely generous and very helpful. Good luck and keep us posted, Margaret "Deano" <d…@cogeco.ca> wrote in message

news:JkIpe.212$qd.159@read1.cgocable.net… – Hide quoted text — Show quoted text ->   I just had a very rude awakening that the severe hernia that I have > around my stoma has caused me to need a MUCH larger appliance.  I have > always used, and been most comfortable with, Convatec Natura flanges and > pouches. I have tired Hollister in the past, but I do not like the feel of > the bags or the "floaty flange" thingy.  But, apparently, Convatec does > not make any appliances larger than the 70mm that I HAD been using. (the > ET in the ER put a 104mm appliance on me)  Now, I am a big guy, 6ft 230 > lbs, but I could almost put my LEG through this diameter flange!! I am > scared, concerned, angry, and in need of some advice from current > Hollister users.  Do they offer a "tan" pouch?  Anything other than plain > plastic bags?  What kind of wear time?  Do they have something similar to > Durahesive?  More or less $$$$ than Convatec??  Thanks in advance. ;-Deano

Response:

   I just had a very rude awakening that the severe hernia that I have around my stoma has caused me to need a MUCH larger appliance.  I have always used, and been most comfortable with, Convatec Natura flanges and pouches. I have tired Hollister in the past, but I do not like the feel of the bags or the "floaty flange" thingy.  But, apparently, Convatec does not make any appliances larger than the 70mm that I HAD been using. (the ET in the ER put a 104mm appliance on me)  Now, I am a big guy, 6ft 230 lbs, but I could almost put my LEG through this diameter flange!! I am scared, concerned, angry, and in need of some advice from current Hollister users.  Do they offer a "tan" pouch?  Anything other than plain plastic bags?  What kind of wear time?  Do they have something similar to Durahesive?  More or less $$$$ than Convatec??  Thanks in advance. ;-Deano

Response:

Publicity in other appropriate groups would be good. Also, suggesting simple to use news readers, google, etc. would be good. Several companies offer "generic" news reading services… for instance, I use "usenet news" and they offer a web based reader which is easy to use. I use "Agent". There is a free version available which is relatively painless. Sorry to see the UOA going away. I’ve had my colostomy since fall 2001, and found the tips and anecdotes very helpful when "getting started". Merlin – Hide quoted text — Show quoted text -Sean <seand-n…@seand.me.uk> wrote: >Bonnie wrote: >> I don’t know how to use Google, I get on by Road Runner’s news-server. >Your option is much better than google, but you have to admit that it isn’t >easy for everyone to set up. >> If you can teach them, by all means do it. >I am not the best at explaining things in simple terms, however >http://groups-beta.google.com/group/alt.support.ostomy >is a good starting point.  You will need to register though to get the full >features. >> Also if those who go to support >> group would share to those at the meetings how to find us it would help >Unfortunately I don’t frequent any "real life" support groups. >> Bonnie >> "Sean" <seand-n…@seand.me.uk> wrote in message >> news:6Uxre.9128$q46.459@newsfe1-win.ntli.net… >>> SD Ostomate wrote: >>>> Bonnie (b4d…@cfl.rr.com) wrote: >>>> : Is there any way to advertise this newsgroup? >>>> : There used to be tons of posters back in 1998 when I first discovered >>>> : it.  I could advertise it on the alt.support.crohns-colitis group if >>>> : that is ok with everyone but wondered what else we can do….the more >>>> : posters the more help given and received. >>>> Unfortunately, all of Usenet is dying.  Most newbies have never >>>> heard of Usenet and everyone else was chased off by the spammers.  It >>>> would be nice to see more posters… here as well as the other >>>> newsgroups. >>> Would it be worthwhile trying to attract people by explaining to them how >>> to >>> use Google Groups, and then weaning them off that and onto a proper >>> client. >>> Sean

Response:

Welcome Ian.  Congratulations on being cancer free! Bonnie "Ian Pollard" <easthor…@yahoo.co.uk> wrote in message

news:0fnta15mcgv21tulkg08r4v28q7rjt4dcs@4ax.com… – Hide quoted text — Show quoted text -> On Sun, 12 Jun 2005 22:44:25 GMT, Rob Hooper > <mebee2004-n…@REMOVEyahoo.com> wrote: >>Bonnie, >>The more the merrier! >>Rob >>Bonnie wrote: >>> Is there any way to advertise this newsgroup? >>> There used to be tons of posters back in 1998 when I first discovered >>> it.  I >>> could advertise it on the alt.support.crohns-colitis group if that is ok >>> with everyone but wondered what else we can do….the more posters the >>> more >>> help given and received. >>> Bonnie > I haven’t posted to this newsgroup before. I much prefer Usenet to Web > based groups so here I am. I have had a colostomy since December 2003 > following an operation for bowel cancer. I live in the North of England > close to the Scottish border and have just had a clear liver scan and a > clear colonoscopy along with two clear blood tests. I know that I am not > out of the woods yet but feel things are moving along. Good to be here > and if I can share my experiences to help anyone else along, I would be > happy to do so. > Ian > — > Ian Pollard//Wooler//Northumberland//UK >             M0FLC

Response:

Thanks…I posted the link at alt.support.crohns-colitis Bonnie "Sean" <seand-n…@seand.me.uk> wrote in message

news:mAzre.9153$q46.1978@newsfe1-win.ntli.net… – Hide quoted text — Show quoted text -> Bonnie wrote: >> I don’t know how to use Google, I get on by Road Runner’s news-server. > Your option is much better than google, but you have to admit that it > isn’t > easy for everyone to set up. >> If you can teach them, by all means do it. > I am not the best at explaining things in simple terms, however > http://groups-beta.google.com/group/alt.support.ostomy > is a good starting point.  You will need to register though to get the > full > features. >> Also if those who go to support >> group would share to those at the meetings how to find us it would help > Unfortunately I don’t frequent any "real life" support groups. >> Bonnie >> "Sean" <seand-n…@seand.me.uk> wrote in message >> news:6Uxre.9128$q46.459@newsfe1-win.ntli.net… >>> SD Ostomate wrote: >>>> Bonnie (b4d…@cfl.rr.com) wrote: >>>> : Is there any way to advertise this newsgroup? >>>> : There used to be tons of posters back in 1998 when I first discovered >>>> : it.  I could advertise it on the alt.support.crohns-colitis group if >>>> : that is ok with everyone but wondered what else we can do….the more >>>> : posters the more help given and received. >>>> Unfortunately, all of Usenet is dying.  Most newbies have never >>>> heard of Usenet and everyone else was chased off by the spammers.  It >>>> would be nice to see more posters… here as well as the other >>>> newsgroups. >>> Would it be worthwhile trying to attract people by explaining to them >>> how >>> to >>> use Google Groups, and then weaning them off that and onto a proper >>> client. >>> Sean

Response:

On Sun, 12 Jun 2005 22:44:25 GMT, Rob Hooper – Hide quoted text — Show quoted text -<mebee2004-n…@REMOVEyahoo.com> wrote: >Bonnie, >The more the merrier! >Rob >Bonnie wrote: >> Is there any way to advertise this newsgroup? >> There used to be tons of posters back in 1998 when I first discovered it.  I >> could advertise it on the alt.support.crohns-colitis group if that is ok >> with everyone but wondered what else we can do….the more posters the more >> help given and received. >> Bonnie

I haven’t posted to this newsgroup before. I much prefer Usenet to Web based groups so here I am. I have had a colostomy since December 2003 following an operation for bowel cancer. I live in the North of England close to the Scottish border and have just had a clear liver scan and a clear colonoscopy along with two clear blood tests. I know that I am not out of the woods yet but feel things are moving along. Good to be here and if I can share my experiences to help anyone else along, I would be happy to do so. Ian — Ian Pollard//Wooler//Northumberland//UK              M0FLC

Response:

I don’t know how to use Google, I get on by Road Runner’s news-server.  If you can teach them, by all means do it.  Also if those who go to support group would share to those at the meetings how to find us it would help Bonnie "Sean" <seand-n…@seand.me.uk> wrote in message

news:6Uxre.9128$q46.459@newsfe1-win.ntli.net… – Hide quoted text — Show quoted text -> SD Ostomate wrote: >> Bonnie (b4d…@cfl.rr.com) wrote: >> : Is there any way to advertise this newsgroup? >> : There used to be tons of posters back in 1998 when I first discovered >> : it.  I could advertise it on the alt.support.crohns-colitis group if >> : that is ok with everyone but wondered what else we can do….the more >> : posters the more help given and received. >> Unfortunately, all of Usenet is dying.  Most newbies have never >> heard of Usenet and everyone else was chased off by the spammers.  It >> would be nice to see more posters… here as well as the other >> newsgroups. > Would it be worthwhile trying to attract people by explaining to them how > to > use Google Groups, and then weaning them off that and onto a proper > client. > Sean

Response:

Bonnie wrote: > I don’t know how to use Google, I get on by Road Runner’s news-server.

Your option is much better than google, but you have to admit that it isn’t easy for everyone to set up. > If you can teach them, by all means do it.

I am not the best at explaining things in simple terms, however http://groups-beta.google.com/group/alt.support.ostomy is a good starting point.  You will need to register though to get the full features. > Also if those who go to support > group would share to those at the meetings how to find us it would help

Unfortunately I don’t frequent any "real life" support groups. – Hide quoted text — Show quoted text -> Bonnie > "Sean" <seand-n…@seand.me.uk> wrote in message > news:6Uxre.9128$q46.459@newsfe1-win.ntli.net… >> SD Ostomate wrote: >>> Bonnie (b4d…@cfl.rr.com) wrote: >>> : Is there any way to advertise this newsgroup? >>> : There used to be tons of posters back in 1998 when I first discovered >>> : it.  I could advertise it on the alt.support.crohns-colitis group if >>> : that is ok with everyone but wondered what else we can do….the more >>> : posters the more help given and received. >>> Unfortunately, all of Usenet is dying.  Most newbies have never >>> heard of Usenet and everyone else was chased off by the spammers.  It >>> would be nice to see more posters… here as well as the other >>> newsgroups. >> Would it be worthwhile trying to attract people by explaining to them how >> to >> use Google Groups, and then weaning them off that and onto a proper >> client. >> Sean

Response:

alt.support.ostomy is dying on the vine due to NEGATIVE posters like SD Ostomate. AMEN "SD Ostomate" <sdostom…@yaNOTTHIShoo.com> wrote in message

news:11amojkjl8cdpb5@corp.supernews.com… – Hide quoted text — Show quoted text -> Bonnie (b4d…@cfl.rr.com) wrote: > : Is there any way to advertise this newsgroup? > : There used to be tons of posters back in 1998 when I first discovered > it.  I > : could advertise it on the alt.support.crohns-colitis group if that is ok > : with everyone but wondered what else we can do….the more posters the > more > : help given and received. > Unfortunately, all of Usenet is dying.  Most newbies have never > heard of Usenet and everyone else was chased off by the spammers.  It > would be nice to see more posters… here as well as the other > newsgroups. > SD

Response:

Larry (ltrapp[@]insightbb.com) stopped jerking off to his Evansville ostomy website long enough to write: > alt.support.ostomy is dying on the vine due to NEGATIVE posters like SD > Ostomate.

Oh yes, it’s all my fault.  You should send an email to my ISP and let them know of my denial-of-service attack on this newsgroup. LOL At least we now know that you are capable of responding to a post in here.  Is that a first for you, LT? SD

Response:

Bonnie, The more the merrier! Rob – Hide quoted text — Show quoted text -Bonnie wrote: > Is there any way to advertise this newsgroup? > There used to be tons of posters back in 1998 when I first discovered it.  I > could advertise it on the alt.support.crohns-colitis group if that is ok > with everyone but wondered what else we can do….the more posters the more > help given and received. > Bonnie

Response:

SD Ostomate wrote: > Bonnie (b4d…@cfl.rr.com) wrote: > : Is there any way to advertise this newsgroup? > : There used to be tons of posters back in 1998 when I first discovered > : it.  I could advertise it on the alt.support.crohns-colitis group if > : that is ok with everyone but wondered what else we can do….the more > : posters the more help given and received. > Unfortunately, all of Usenet is dying.  Most newbies have never > heard of Usenet and everyone else was chased off by the spammers.  It > would be nice to see more posters… here as well as the other > newsgroups.

Would it be worthwhile trying to attract people by explaining to them how to use Google Groups, and then weaning them off that and onto a proper client. Sean

Response:

Bonnie (b4d…@cfl.rr.com) wrote:

: Is there any way to advertise this newsgroup? : There used to be tons of posters back in 1998 when I first discovered it.  I : could advertise it on the alt.support.crohns-colitis group if that is ok : with everyone but wondered what else we can do….the more posters the more : help given and received. Unfortunately, all of Usenet is dying.  Most newbies have never heard of Usenet and everyone else was chased off by the spammers.  It would be nice to see more posters… here as well as the other newsgroups. SD

Response:

well, I will try to get more people here if I can. Bonnie "SD Ostomate" <sdostom…@yaNOTTHIShoo.com> wrote in message

news:11amojkjl8cdpb5@corp.supernews.com… – Hide quoted text — Show quoted text -> Bonnie (b4d…@cfl.rr.com) wrote: > : Is there any way to advertise this newsgroup? > : There used to be tons of posters back in 1998 when I first discovered > it.  I > : could advertise it on the alt.support.crohns-colitis group if that is ok > : with everyone but wondered what else we can do….the more posters the > more > : help given and received. > Unfortunately, all of Usenet is dying.  Most newbies have never > heard of Usenet and everyone else was chased off by the spammers.  It > would be nice to see more posters… here as well as the other > newsgroups. > SD

Response:

Is there any way to advertise this newsgroup? There used to be tons of posters back in 1998 when I first discovered it.  I could advertise it on the alt.support.crohns-colitis group if that is ok with everyone but wondered what else we can do….the more posters the more help given and received. Bonnie

Response:

Has anyone encountered a problem getting through airline security because he/she is wearing an ostomy appliance?  The reason I ask is an item in a newsletter that said: "There is a lot of discussion about this (electronic strip searching boarding passengers), but you can check this website for a sample of what the airport screeners can see with the x-ray machines and decide if these extra intrusions are worth the advantages of flying (over driving) and having the "good feeling" that your flight may be safer. I suppose there is irony in this… the LAW requires people cover their sexual parts, in public, but reveal them at the airport. Keep in mind that the images released to the press are blurred. The real ones they see are sharp and clear." How would an ostomy appliance show up on such a device?  And, what would be the reaction of the screeners? If you’re interested, there are a number of web sites that discuss this technology but they’re generally of the conspiracy theorists’ persuasion. However, I’m sure Google or Yahoo can bring up a number of sites that treat the subject thoughtfully and rationally. PJF

Response:

PJF wrote: > Has anyone encountered a problem getting through airline security because > he/she is wearing an ostomy appliance?  

Not at all, though all flights I have taken have been within Europe. > The reason I ask is an item in a newsletter that said: > "There is a lot of discussion about this (electronic strip searching > boarding passengers), but you can check this website > for a sample of what the airport screeners can see with the x-ray machines > and decide if these extra intrusions are worth the > advantages of flying (over driving)

and over sailing. > and having the "good feeling" that your flight may be safer.

What website are you referring to?  I get the impression that (especially in the US) you can get away with absolutely anything if you can somehow link it to national security. > I suppose there is irony in this… the LAW requires people cover their > sexual parts, in public, but reveal them at the airport. Keep in mind that > the images released to the press are blurred. The real ones they see are > sharp and clear."

I believe there have been concerns that such machines could violate child pornography laws in the UK. > How would an ostomy appliance show up on such a device?  And, what would > be the reaction of the screeners?

I haven’t seen the pictures, so can’t comment how it would look.  I imagine the best way of preventing embarassment would be to include scenrios such as people with ostomies in the training that is used to allow people to operate these machines. In any case, I imagine it will/has be embarassing for the first few ostomates using the system, but after a while an ostomy will be easier recognised and hopefully in time wouldn’t cause any problems. However I believe (though thankfully have yet to personally encounter) that some security at airports like the feeling of power, so these sorts could be problematic. > If you’re interested, there are a number of web sites that discuss this > technology but they’re generally of the conspiracy theorists’ persuasion. > However, I’m sure Google or Yahoo can bring up a number of sites that > treat the subject thoughtfully and rationally.

I am personally not bothered about use of this technology, unless of course it causes me to lose time at airports convincing people that an ostomy is not a terrorist threat. Sean – Hide quoted text — Show quoted text -> PJF

Response:

Hello. I have Crohns and also a colostomy which has already sufered a parastomal hernia whoich was repaired approx 6months agoIt was reparied VERY WELL with mesh and the stoma didn’t have to be resited which was what i had wanted. The problem now? Another parastomal hernia. The same symptoms and feelings as before but it seems a bit worse this time as it is effectively causing the stoma not to function as smoothly as before. The area behind and around the stoma site is raised up by a few inches. The stoma is ’sitting on a mound’ if you like and this raised mound is very soft and plyable, if i stand up it drops down, if i on one side, the herniated skin area falls to the side too. I am sure you can imagine what this means as far as getting bags to stick to it for very long is like! It isn’t great. I am getting pretty fed up here. Every time the stoma ‘works’, which can be pretty violent anyway due to active crohns, i feel the need to find a quite spot and quickly look and check to see if it has leaked. It is happening so often now that it usually has leaked when I hear it! I am not e what to do. I will be seeing a stoma nurse son, maybe within two weeks but I just wanted to read about and hear other peoples experiences and stories of Parastomal Hernia. If you have an experience, please share it. It would be a great help to me. Thanks in advance, Fa.

Response:

I had a hernia about 2 years ago that was about like a 1/2 canteloupe with a stoma on top. Othe best appliance I found to fit over the rounded surface was MicroSkin: http://www.cymed-ostomy.com/  800-582-0707 Call and ask for free samples/ Good luck and be well, Charles in TX

Response:

Thanks Charles. That site and the stuff you recommend looks like just what I need. Now, as I am in UK I am trying to locate either a supplier of it over here or a similar product. No luck sofar but I will try calling my supplier tomorrow and see what they can recommend. Thanks again! I laughed when you said canteloupe! hehe that is what I have right now! Fa. – Hide quoted text — Show quoted text -sniderc…@yahoo.com wrote: > I had a hernia about 2 years ago that was about like a 1/2 canteloupe > with a stoma on top. > Othe best appliance I found to fit over the rounded surface was > MicroSkin: > http://www.cymed-ostomy.com/  800-582-0707 > Call and ask for free samples/ > Good luck and be well, > Charles in TX

Response:

I’ve had my ileostomy since ‘98 and proctectomy in 2000.  For the first time since then I have got a vomiting bug.  But it seems to be hurting me more than I ever remember – like my insides are being twisted by the retching.  It also seems to have retracted my stoma to just slightly above skin level.  Any tips or advice? Thanks John

Response:

I’m new to all this and fortunately have not vomited since getting my ileostomy.  But prior to it, I had several bad obstructions.  In my experience, the vomiting caused by obstructions is far more "violent" than vomiting due to a bug or whatever.  So my question is, do you think you might have an obstruction?  It might be worth a call to your doc. Feel better! Margaret "Jack" <sida…@yahoo.co.uk> wrote in message

news:ee318493.0504180528.41e60cb9@posting.google.com… – Hide quoted text — Show quoted text -> I’ve had my ileostomy since ‘98 and proctectomy in 2000.  For the > first time since then I have got a vomiting bug.  But it seems to be > hurting me more than I ever remember – like my insides are being > twisted by the retching.  It also seems to have retracted my stoma to > just slightly above skin level.  Any tips or advice? > Thanks > John

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