Learning Ostomy

Question:

I’m not sure that even if I could get more than 7 days ( I get about 6) wear time that I would want to go longer than that.

Response:

Just ordered the 7299’s.  Looking forward to how it works. Regards, PJF "Jim in Boston" <zok…@aol.comnojunk> wrote in message news:20040125182658.20534.00000409@mb-m21.aol.com… – Hide quoted text — Show quoted text -> Hollister sells three belts (S, M, L).  I use the large (29-42 in.) which, I > think, is model 7299, unless they have changed their numbering system since > last year. > Jim/Boston > >Do you have a catalog or other stock # for the Holister belt you recommend? > >I agree re the Convetec belt.  It is thin and does tend to roll. > >Thanks and regards, > >PJF > I’m not young enough to know everything. — J.M.Barrie

Response:

Here’s an update on my experience with adding a flexible/stretchable wafer to the Sur-Fit Convectec Natura faceplate. Anyway, I got at least 10 days’ wear from that combination; it could have been 14 but I lost count. It was still working well when I changed it this morning but the adhesive tape was beginning to come loose. (I do, BTW, use the Hollister belt.) In my original message asking for anyone else’s experience with doing this, I mentioned Eaking seals since they are so popular and well respected. However, in my experiment, I used Marlen’s Ultraseal wafers, which I already had on hand. I’m sure, having had excellent experience with the Eakin seals over several years, that the Eakin would be equally satisfactory. BTW, does anyone know of a hypo-allergenic spray adhesive? I think I might get some additional wear time from my face plates if I could occasionally spray some adhesive on the tape that holds them. Any suggestions would be appreciated. Regards, PJF Previous message: Has anyone who uses the Convetec Sur-Fit Natura Flexible Wafer tried to add an Eakin or other seal to extend the useful wear-time of the wafer?  If so, I’d appreciate knowing how it worked. Thanks and regards, PJF

Response:

>> "Ron G" <r…@gould.net> wrote in message > > I agree totally— I have tried several different belts, the only > one I  found that didn’t roll up in a rope is the Hollister belt. > > It

stays nice and flat. > To me the Coloplast belt seems identical to the Hollister belt. > Either work well. > David

Hey, thanks for the tip— I made the classic mistake of saying "the only one I found", and I had not tried Coloplast, but I sounded like I tried them all. I was accidently misleading. That last stroke (4) must of done in my brains a wee bit    ;-)) Sorry about that—- Thanks for your reply. Best—- Ron — Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.571 / Virus Database: 361 – Release Date: 1/26/04

Response:

Jim in Boston <zok…@aol.comnojunk> wrote in message news:20040124173915.21810.00000743@mb-m14.aol.com… > I also find that wearing a belt increases wear time.  Don’t get the Convatec > belt–it is thin and cheaply made and will turn into an uncomfortable rolled > rope in no time.  Buy a Hollister belt instead.  They are wide, comfortable to > wear, hold their shape indefinitely, and the clasp can be made to fit on either > Convatec or Hollister pouch rings.

I agree totally— I have tried several different belts, the only one I found that didn’t roll up in a rope is the Hollister belt. It stays nice and flat. It works great with my convatec 2 piece convex flange. Best— Ron — Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.556 / Virus Database: 348 – Release Date: 12/28/03

Response:

"Ron G" <r…@gould.net> wrote in message

news:bv3s4n0163h@enews1.newsguy.com… – Hide quoted text — Show quoted text -> Jim in Boston <zok…@aol.comnojunk> wrote in message > news:20040124173915.21810.00000743@mb-m14.aol.com… > > I also find that wearing a belt increases wear time.  Don’t get the > Convatec > > belt–it is thin and cheaply made and will turn into an uncomfortable > rolled > > rope in no time.  Buy a Hollister belt instead.  They are wide, > comfortable to > > wear, hold their shape indefinitely, and the clasp can be made to fit on > either > > Convatec or Hollister pouch rings. > I agree totally— I have tried several different belts, the only one I > found that didn’t roll up in a rope is the Hollister belt. > It stays nice and flat. > It works great with my convatec 2 piece convex flange. > Best— > Ron

To me the Coloplast belt seems identical to the Hollister belt. Either work well. David

Response:

Just ordered that Hollister belt in that size and used stock # 7300. PcolaPhil To Reply remove SPAMNOT. Of course I’m against sin.  I’m against anything that I’m too old to enjoy. "Jim in Boston" <zok…@aol.comnojunk> wrote in message news:20040125182658.20534.00000409@mb-m21.aol.com… | Hollister sells three belts (S, M, L).  I use the large (29-42 in.) which, I | think, is model 7299, unless they have changed their numbering system since | last year. | | Jim/Boston | | >Do you have a catalog or other stock # for the Holister belt you recommend? | >I agree re the Convetec belt.  It is thin and does tend to roll. | > | >Thanks and regards, | > | >PJF | > | | | I’m not young enough to know everything. — J.M.Barrie

Response:

Thanks, Jim.  I’ll follow up. Regards, PJF "Jim in Boston" <zok…@aol.comnojunk> wrote in message news:20040125182658.20534.00000409@mb-m21.aol.com… – Hide quoted text — Show quoted text -> Hollister sells three belts (S, M, L).  I use the large (29-42 in.) which, I > think, is model 7299, unless they have changed their numbering system since > last year. > Jim/Boston > >Do you have a catalog or other stock # for the Holister belt you recommend? > >I agree re the Convetec belt.  It is thin and does tend to roll. > >Thanks and regards, > >PJF > I’m not young enough to know everything. — J.M.Barrie

Response:

Hollister sells three belts (S, M, L).  I use the large (29-42 in.) which, I think, is model 7299, unless they have changed their numbering system since last year. Jim/Boston >Do you have a catalog or other stock # for the Holister belt you recommend? >I agree re the Convetec belt.  It is thin and does tend to roll. >Thanks and regards, >PJF

I’m not young enough to know everything. — J.M.Barrie

Response:

Jim, Do you have a catalog or other stock # for the Holister belt you recommend? I agree re the Convetec belt.  It is thin and does tend to roll. Thanks and regards, PJF "Jim in Boston" <zok…@aol.comnojunk> wrote in message news:20040124173915.21810.00000743@mb-m14.aol.com… – Hide quoted text — Show quoted text -> I have an ileostomy (since ‘99) and use the Convatec Duradhesive convex wafer. > I cut a ribbon of Eakin Seal about 1/2 inch wide and ring the stoma opening of > the flange with the Eakin strip prior to applying it on my skin (one large seal > can produce enough strip to accommodate several wafers). > I press down the outer edges of the strip with the side of the scissor blade, > so it slopes nicely down to the wafer surface (no gap), although that is > probably not necessary.  I also dry the peristomal skin with a hair dryer (low > setting) and heat the flange a little (high setting) just before attaching it > to the skin. > After I have placed the flange securely, I put a little paste around the stoma > to seal waste away from the wafer for a few hours to give it time to form a > "turtleneck" around the stoma. > I routinely get 12-14 days wear from one wafer after ringing the stoma with the > band of Eakin.  Without the Eakin, I get maybe 7-8 days. > I also find that wearing a belt increases wear time.  Don’t get the Convatec > belt–it is thin and cheaply made and will turn into an uncomfortable rolled > rope in no time.  Buy a Hollister belt instead.  They are wide, comfortable to > wear, hold their shape indefinitely, and the clasp can be made to fit on either > Convatec or Hollister pouch rings. > Good luck, > Jim/Boston > >Has anyone who uses the Convetec Sur-Fit Natura Flexible Wafer tried to add > >an Eakin or other seal to extend the useful wear-time of the wafer?  If so, > >I’d appreciate knowing how it worked. > >Thanks and regards, > >PJF > I’m not young enough to know everything. — J.M.Barrie

Response:

I have an ileostomy (since ‘99) and use the Convatec Duradhesive convex wafer. I cut a ribbon of Eakin Seal about 1/2 inch wide and ring the stoma opening of the flange with the Eakin strip prior to applying it on my skin (one large seal can produce enough strip to accommodate several wafers). I press down the outer edges of the strip with the side of the scissor blade, so it slopes nicely down to the wafer surface (no gap), although that is probably not necessary.  I also dry the peristomal skin with a hair dryer (low setting) and heat the flange a little (high setting) just before attaching it to the skin. After I have placed the flange securely, I put a little paste around the stoma to seal waste away from the wafer for a few hours to give it time to form a "turtleneck" around the stoma.   I routinely get 12-14 days wear from one wafer after ringing the stoma with the band of Eakin.  Without the Eakin, I get maybe 7-8 days. I also find that wearing a belt increases wear time.  Don’t get the Convatec belt–it is thin and cheaply made and will turn into an uncomfortable rolled rope in no time.  Buy a Hollister belt instead.  They are wide, comfortable to wear, hold their shape indefinitely, and the clasp can be made to fit on either Convatec or Hollister pouch rings. Good luck, Jim/Boston >Has anyone who uses the Convetec Sur-Fit Natura Flexible Wafer tried to add >an Eakin or other seal to extend the useful wear-time of the wafer?  If so, >I’d appreciate knowing how it worked. >Thanks and regards, >PJF

I’m not young enough to know everything. — J.M.Barrie

Response:

Yup.  Been using Sur-Fit Natura Durahesive plus Eakin for two years, and, while I ordinarily change regularly after 7 days to avoid any possibility of breakdowns, I’ve gone as long as 14 days between changes at times with no problem. Vince "PJF" <pjfNOS…@earthlink.net> wrote in message

news:WpwQb.27994$DE.14811@fe2.columbus.rr.com… – Hide quoted text — Show quoted text -> Has anyone who uses the Convetec Sur-Fit Natura Flexible Wafer tried to add > an Eakin or other seal to extend the useful wear-time of the wafer?  If so, > I’d appreciate knowing how it worked. > Thanks and regards, > PJF

Response:

Has anyone who uses the Convetec Sur-Fit Natura Flexible Wafer tried to add an Eakin or other seal to extend the useful wear-time of the wafer?  If so, I’d appreciate knowing how it worked. Thanks and regards, PJF

Response:

PJF, Good question.  I’ll let you know in a week since I’m in the second day of my first attempt to use that combination.   ConvaTec told me to expect 3 to 7 days and no need to use Eakins. Since I normally get 7 to 11 days with Hollister and Eakins I’m hopeful the ConvaTec will withstand the test.  Generally, I see relatively little breakdown in the Eakin Seals after removal even at 10 or 11 days.  They’re a great product. I’ll post the results next week but remember it is only one use combined with the coldest spell of the winter here in Chicago. Ciao, Tino

Response:

Question:

Although I like Coloplast products and have only worn seven of them I’ve had three failures in the pouch and not the flange.  Two yielded holes just above the clip on the toe while the other one failed at the top above the stoma. Coloplast asssures me they have never had this happen before.  Sure!!! Has anyone else experienced similar issues? Thanks in advance and Boun Natale! Tino

Response:

I’m a big Coloplast fan and have never had any problems other than when my cat jumped off my lap and his back claw made a slight rip in the pouch…bad kitty! So far, I haven’t found anything easier or more comfortable to wear!  No clip….yeeeahh! Susan

Response:

Hi… You may try one of the tricks I use to avoid spills caused by the pouch failure. Doubling the bag  brings the risk of those embarrassing situations almost to nothing. Here it is, as published on this site in August: ============== <nv…@caramail.com> a

Question:

Linda….. The hardest part is still to come…..I have to go back up North to sell the house…..It’s the only house I ever new when I was growing up…..I was born and raised there….. Cheryl

Response:

Thank you mgbio…… If my mom would have gotten stable I new I was going to have to put her in a nursing home and that in its self would have made her loose her will to live……she loved her home…… Cheryl

Response:

Thanks Jennifer…….The support is great….. Cheryl

Response:

Thanks Rebecca…… That big hug felt GREAT…..everyone of you are terrific…… Cheryl

Response:

Cheryl, (   I’m sure it’ll be very hard to sell the home you grew up in.  I’m 52 now and get terribly nostalgic for my own "little house" I was raised in, in N.Y.  It was in the Catskill Mts., beautiful, and sometimes I can actually smell it.  Does that sound crazy?!  Pls let us know when you’ll be leaving so we can "pump" ya up! Hugs,  Linda

– Hide quoted text — Show quoted text – Linda….. The hardest part is still to come…..I have to go back up North to sell the house…..It’s the only house I ever new when I was growing up…..I was born and raised there….. Cheryl

Response:

Pat….. Thank you it means a lot to me…..and I’m certain we’ll get to know one another from this ng……I love each and everyone of you from this group…… Cheryl  

Response:

Is this Larry??? Staci’s other half?? If so we’ll get to meet…..I promised Staci that Mike & I would be coming back up to Ocala when the weather gets nicer……(I hope I’ve got the right person—-if not excuse me for the error….there are soooooo many new names) and thank Cheryl

Response:

Thanks John….. Things have been a litttle ruff but I’m back on my everyday juicing, colloidal vitamins & minerals and I can see a big difference Cheryl

Response:

Cheryl, I’m so sorry for your loss.  You’re in my thoughts and my prayers. {{{{{{Cheryl}}}}}} Take Care, Sherry – Hide quoted text — Show quoted text – Sorry for the mistake……I’ll try this again…… I just returned home from my mom’s funeral. It has been 17 yrs. since my mother has been here. She lives (lived) in Toledo, Ohio and after my father passed away in 1983 she had turned into a hermit (so to speak) The only time she ever left the house was to get her hair done every Saturday (or the grocery store when she could walk better) Other than that she spent 24 hrs. a day, seven days a week in her home. Well I finally got her here (Lakeland, Fl.) for Christmas and she passed away. The whole time she was here she just kept telling me she wanted to go HOME but the weather was so bad that I never had the chance to get her there. (she refused to fly) On the morning of New Year’s Eve we had to take her to the hospital. She had a stroke and couldn’t get around without help and she had also developed a small cold. Things just got worse and Friday (Jan. 5) she passed away. So Mike and my older brother who lives in Daytona took off the next day and drove straight thru. What a nightmare for me…….I had promised my mom that it would be a private service (just her brothers and sisters with no viewing) but my younger brother and my brother from Florida decided to have a visitation on a Wednesday and a full service on Thursday (with a viewing for the ones who chose to) I tried to do what she wanted but was out voted……She always said "If they can’t come and see me while I’m alive then she didn"t want them to see her after she died". My mother was the most unhappiest person I have ever met, so she finally has found peace……. This past ten months has really been a ruff one. It started with my mom having total hip replacement…….Then our son almost lost his eye in an accident (he’s legally blind in that eye but with a contact he has 20-30 vision). Next my younger brother in Toledo fell off a ladder and shattered his foot and heel (he is a walking postman and just started back to work the week before Christmas doing odd jobs until he can get his strength back in that leg……then during his recovery his liver completely shut down and we almost lost him…..his electrolites were all messed up and they didn’t look for him to make it thru the night but he pulled thru that……and right before Christmas my mom’s younger brother (my uncle) had to go in for emergency service and have a colostomy……he’s having all sorts of problems and is still in the hospital….. Gosh, I didn’t mean to ramble on like this but I’ve been so sick since I’ve gotten home that I had to vent somewhere…..Sorry everyone, who was able to get to the end of this…..just say a few prayers or whatever you do…..and send them my  way…..I certainly can use some right now……. Cheryl

Response:

{{{{{{Cheryl}}}}}}

Response:

Staci…… Yesterday was a pretty good day……I’m hoping today is even better…….Thanks…… Cheryl

Response:

((((((((((Cheryl))))))))))) I am so sorry to hear about your mom. I’m sending lots of prayers and good thoughts your way! We are all here for you if you need us. Rebecca

– Hide quoted text — Show quoted text – Sorry for the mistake……I’ll try this again…… I just returned home from my mom’s funeral. It has been 17 yrs. since my mother has been here. She lives (lived) in Toledo, Ohio and after my father passed away in 1983 she had turned into a hermit (so to speak) The only time she ever left the house was to get her hair done every Saturday (or the grocery store when she could walk better) Other than that she spent 24 hrs. a day, seven days a week in her home. Well I finally got her here (Lakeland, Fl.) for Christmas and she passed away. The whole time she was here she just kept telling me she wanted to go HOME but the weather was so bad that I never had the chance to get her there. (she refused to fly) On the morning of New Year’s Eve we had to take her to the hospital. She had a stroke and couldn’t get around without help and she had also developed a small cold. Things just got worse and Friday (Jan. 5) she passed away. So Mike and my older brother who lives in Daytona took off the next day and drove straight thru. What a nightmare for me…….I had promised my mom that it would be a private service (just her brothers and sisters with no viewing) but my younger brother and my brother from Florida decided to have a visitation on a Wednesday and a full service on Thursday (with a viewing for the ones who chose to) I tried to do what she wanted but was out voted……She always said "If they can’t come and see me while I’m alive then she didn"t want them to see her after she died". My mother was the most unhappiest person I have ever met, so she finally has found peace……. This past ten months has really been a ruff one. It started with my mom having total hip replacement…….Then our son almost lost his eye in an accident (he’s legally blind in that eye but with a contact he has 20-30 vision). Next my younger brother in Toledo fell off a ladder and shattered his foot and heel (he is a walking postman and just started back to work the week before Christmas doing odd jobs until he can get his strength back in that leg……then during his recovery his liver completely shut down and we almost lost him…..his electrolites were all messed up and they didn’t look for him to make it thru the night but he pulled thru that……and right before Christmas my mom’s younger brother (my uncle) had to go in for emergency service and have a colostomy……he’s having all sorts of problems and is still in the hospital….. Gosh, I didn’t mean to ramble on like this but I’ve been so sick since I’ve gotten home that I had to vent somewhere…..Sorry everyone, who was able to get to the end of this…..just say a few prayers or whatever you do…..and send them my  way…..I certainly can use some right now……. Cheryl

Response:

cherlt i don’t know what to say but …..  :)  

Response:

((((((((((((((((( CHERYL )))))))))))))))))))) Prayers are heading out your way …. Now I want you to regroup and regain your strength … !!  You have a heart of gold, and everything will soon fall in place, and you have your rock, your husband, who loves you and will be there for you when needed … and even when not needed !! Maryjo Come visit my webpage : http://community-2.webtv.net/MaryjoL/MYPAGE/

Response:

Cheryl Its supposed to be in the 80s on friday, but dropping down to the 60s by the weekend …. but sunny !!! Hmmmm …… Bike week ….. means traffic on 301 …. which means business will be up …. COOL !!!! Come visit my webpage : http://community-2.webtv.net/MaryjoL/MYPAGE/

Response:

Cheryl, I don’t know you but I want you to know that my heart is hurting for you and your loss. God Bless you Pat

Response:

Linda and Maryjo……. I"m starting to get myself back to normal……started taking my Colloidal Vitamins & Minerals, Aloe Vera, and juicing again……so it should’t be to long until I’m back on the bike…..I can hardly wait till BIKE WEEK…… I forgot to mention that my daughter (Devin) had to have a growth taken off her cervix yesterday……they say no cancer but until the biopsy comes back I"ll still be worried….. Cheryl…….who hopes it’s a nice weekend for a bike ride (Libby you’re in my thoughts everytime I hop on that seat  ;-)….)

Response:

My condolences to you on the loss of your Mother.  It sounds like you and your family have been through a lot these last few months.  I hope things are on the upswing for you, hang in there!  mgbio – Hide quoted text — Show quoted text – Sorry for the mistake……I’ll try this again…… I just returned home from my mom’s funeral. It has been 17 yrs. since my mother has been here. She lives (lived) in Toledo, Ohio and after my father passed away in 1983 she had turned into a hermit (so to speak) The only time she ever left the house was to get her hair done every Saturday (or the grocery store when she could walk better) Other than that she spent 24 hrs. a day, seven days a week in her home. Well I finally got her here (Lakeland, Fl.) for Christmas and she passed away. The whole time she was here she just kept telling me she wanted to go HOME but the weather was so bad that I never had the chance to get her there. (she refused to fly) On the morning of New Year’s Eve we had to take her to the hospital. She had a stroke and couldn’t get around without help and she had also developed a small cold. Things just got worse and Friday (Jan. 5) she passed away. So Mike and my older brother who lives in Daytona took off the next day and drove straight thru. What a nightmare for me…….I had promised my mom that it would be a private service (just her brothers and sisters with no viewing) but my younger brother and my brother from Florida decided to have a visitation on a Wednesday and a full service on Thursday (with a viewing for the ones who chose to) I tried to do what she wanted but was out voted……She always said "If they can’t come and see me while I’m alive then she didn"t want them to see her after she died". My mother was the most unhappiest person I have ever met, so she finally has found peace……. This past ten months has really been a ruff one. It started with my mom having total hip replacement…….Then our son almost lost his eye in an accident (he’s legally blind in that eye but with a contact he has 20-30 vision). Next my younger brother in Toledo fell off a ladder and shattered his foot and heel (he is a walking postman and just started back to work the week before Christmas doing odd jobs until he can get his strength back in that leg……then during his recovery his liver completely shut down and we almost lost him…..his electrolites were all messed up and they didn’t look for him to make it thru the night but he pulled thru that……and right before Christmas my mom’s younger brother (my uncle) had to go in for emergency service and have a colostomy……he’s having all sorts of problems and is still in the hospital….. Gosh, I didn’t mean to ramble on like this but I’ve been so sick since I’ve gotten home that I had to vent somewhere…..Sorry everyone, who was able to get to the end of this…..just say a few prayers or whatever you do…..and send them my  way…..I certainly can use some right now……. Cheryl

Response:

Cheryl I was beginning to worry about you … thought maybe your husband tied you to the back of the bike and you headed off to the wide horizens !!! Come visit my webpage : http://community-2.webtv.net/MaryjoL/MYPAGE/

Response:

Wow, Cheryl, when it rains, it pours.  Bless your heart.  And how’s the gut through all of this?  I’ll keep you in my prayers. Staci

Response:

Dear Cheryl, I just read your second post.  I’m so very sorry about all the problems with your family and the death of your Mother.  You will be in my thoughts and prayers.  I lost my Mom New Year’s Eve in 1993.  It’s still very difficult for me to believe she’s gone.  We were so close and I sometimes almost pick up the telephone to call her. Hugs,  Linda

– Hide quoted text — Show quoted text – Sorry for the mistake……I’ll try this again…… I just returned home from my mom’s funeral. It has been 17 yrs. since my mother has been here. She lives (lived) in Toledo, Ohio and after my father passed away in 1983 she had turned into a hermit (so to speak) The only time she ever left the house was to get her hair done every Saturday (or the grocery store when she could walk better) Other than that she spent 24 hrs. a day, seven days a week in her home. Well I finally got her here (Lakeland, Fl.) for Christmas and she passed away. The whole time she was here she just kept telling me she wanted to go HOME but the weather was so bad that I never had the chance to get her there. (she refused to fly) On the morning of New Year’s Eve we had to take her to the hospital. She had a stroke and couldn’t get around without help and she had also developed a small cold. Things just got worse and Friday (Jan. 5) she passed away. So Mike and my older brother who lives in Daytona took off the next day and drove straight thru. What a nightmare for me…….I had promised my mom that it would be a private service (just her brothers and sisters with no viewing) but my younger brother and my brother from Florida decided to have a visitation on a Wednesday and a full service on Thursday (with a viewing for the ones who chose to) I tried to do what she wanted but was out voted……She always said "If they can’t come and see me while I’m alive then she didn"t want them to see her after she died". My mother was the most unhappiest person I have ever met, so she finally has found peace……. This past ten months has really been a ruff one. It started with my mom having total hip replacement…….Then our son almost lost his eye in an accident (he’s legally blind in that eye but with a contact he has 20-30 vision). Next my younger brother in Toledo fell off a ladder and shattered his foot and heel (he is a walking postman and just started back to work the week before Christmas doing odd jobs until he can get his strength back in that leg……then during his recovery his liver completely shut down and we almost lost him…..his electrolites were all messed up and they didn’t look for him to make it thru the night but he pulled thru that……and right before Christmas my mom’s younger brother (my uncle) had to go in for emergency service and have a colostomy……he’s having all sorts of problems and is still in the hospital….. Gosh, I didn’t mean to ramble on like this but I’ve been so sick since I’ve gotten home that I had to vent somewhere…..Sorry everyone, who was able to get to the end of this…..just say a few prayers or whatever you do…..and send them my  way…..I certainly can use some right now……. Cheryl

Response:

Gee Cheryl, your’ve been through so much. I hope my thoughts and prayers help in some way. John H(I)

– Hide quoted text — Show quoted text – Sorry for the mistake……I’ll try this again…… I just returned home from my mom’s funeral. It has been 17 yrs. since my mother has been here. She lives (lived) in Toledo, Ohio and after my father passed away in 1983 she had turned into a hermit (so to speak) The only time she ever left the house was to get her hair done every Saturday (or the grocery store when she could walk better) Other than that she spent 24 hrs. a day, seven days a week in her home. Well I finally got her here (Lakeland, Fl.) for Christmas and she passed away. The whole time she was here she just kept telling me she wanted to go HOME but the weather was so bad that I never had the chance to get her there. (she refused to fly) On the morning of New Year’s Eve we had to take her to the hospital. She had a stroke and couldn’t get around without help and she had also developed a small cold. Things just got worse and Friday (Jan. 5) she passed away. So Mike and my older brother who lives in Daytona took off the next day and drove straight thru. What a nightmare for me…….I had promised my mom that it would be a private service (just her brothers and sisters with no viewing) but my younger brother and my brother from Florida decided to have a visitation on a Wednesday and a full service on Thursday (with a viewing for the ones who chose to) I tried to do what she wanted but was out voted……She always said "If they can’t come and see me while I’m alive then she didn"t want them to see her after she died". My mother was the most unhappiest person I have ever met, so she finally has found peace……. This past ten months has really been a ruff one. It started with my mom having total hip replacement…….Then our son almost lost his eye in an accident (he’s legally blind in that eye but with a contact he has 20-30 vision). Next my younger brother in Toledo fell off a ladder and shattered his foot and heel (he is a walking postman and just started back to work the week before Christmas doing odd jobs until he can get his strength back in that leg……then during his recovery his liver completely shut down and we almost lost him…..his electrolites were all messed up and they didn’t look for him to make it thru the night but he pulled thru that……and right before Christmas my mom’s younger brother (my uncle) had to go in for emergency service and have a colostomy……he’s having all sorts of problems and is still in the hospital….. Gosh, I didn’t mean to ramble on like this but I’ve been so sick since I’ve gotten home that I had to vent somewhere…..Sorry everyone, who was able to get to the end of this…..just say a few prayers or whatever you do…..and send them my  way…..I certainly can use some right now……. Cheryl

Response:

Hi everyone…..I’m back home and praying that everything starts to go smooth

Response:

Hi Cheryl, Welcome back!  I hope you’re doing well. Linda

– Hide quoted text — Show quoted text – Hi everyone…..I’m back home and praying that everything starts to go smooth

Response:

Sorry for the mistake……I’ll try this again…… I just returned home from my mom’s funeral. It has been 17 yrs. since my mother has been here. She lives (lived) in Toledo, Ohio and after my father passed away in 1983 she had turned into a hermit (so to speak) The only time she ever left the house was to get her hair done every Saturday (or the grocery store when she could walk better) Other than that she spent 24 hrs. a day, seven days a week in her home. Well I finally got her here (Lakeland, Fl.) for Christmas and she passed away. The whole time she was here she just kept telling me she wanted to go HOME but the weather was so bad that I never had the chance to get her there. (she refused to fly) On the morning of New Year’s Eve we had to take her to the hospital. She had a stroke and couldn’t get around without help and she had also developed a small cold. Things just got worse and Friday (Jan. 5) she passed away. So Mike and my older brother who lives in Daytona took off the next day and drove straight thru. What a nightmare for me…….I had promised my mom that it would be a private service (just her brothers and sisters with no viewing) but my younger brother and my brother from Florida decided to have a visitation on a Wednesday and a full service on Thursday (with a viewing for the ones who chose to) I tried to do what she wanted but was out voted……She always said "If they can’t come and see me while I’m alive then she didn"t want them to see her after she died". My mother was the most unhappiest person I have ever met, so she finally has found peace……. This past ten months has really been a ruff one. It started with my mom having total hip replacement…….Then our son almost lost his eye in an accident (he’s legally blind in that eye but with a contact he has 20-30 vision). Next my younger brother in Toledo fell off a ladder and shattered his foot and heel (he is a walking postman and just started back to work the week before Christmas doing odd jobs until he can get his strength back in that leg……then during his recovery his liver completely shut down and we almost lost him…..his electrolites were all messed up and they didn’t look for him to make it thru the night but he pulled thru that……and right before Christmas my mom’s younger brother (my uncle) had to go in for emergency service and have a colostomy……he’s having all sorts of problems and is still in the hospital….. Gosh, I didn’t mean to ramble on like this but I’ve been so sick since I’ve gotten home that I had to vent somewhere…..Sorry everyone, who was able to get to the end of this…..just say a few prayers or whatever you do…..and send them my  way…..I certainly can use some right now……. Cheryl

Response:

Question:

I just started using the 2 piece non-drainable convatec with the charcoal filter to expel gas.  I have noticed that around the filter, there is alittle leakage. It doesn’t smell, just leaves a small stain on my undershirt..  I might have broken the filter because I was moving the bag around alot trying to get it on the flange.  Has anyone else has had this problem. Patrick

Response:

>around the filter, there is >alittle leakage.

It is a sign of poor quality control or no quality control.  Complain to ConvaTec _in writing_ and send a copy to FDA/MedWatch.

Response:

Do you have a colostomy or an ileostomy? The non-drainable pouches with filters are designed for colostomies – ileostomy output is too liquidy for those filters. One option would be to use non-drainable pouches without the built in filter. For gas release with these pouches, the Osto EZ Vent works well (available from Edgepark). Pam (I 3/99) – Hide quoted text — Show quoted text -Patrick Koch wrote: > I just started using the 2 piece non-drainable convatec with the charcoal > filter to expel gas.  I have noticed that around the filter, there is > alittle leakage. It doesn’t smell, just leaves a small stain on my > undershirt..  I might have broken the filter because I was moving the bag > around alot trying to get it on the flange.  Has anyone else has had this > problem. > Patrick

Response:

Question:

I love it!!  I don’t feel so all alone now for sure!!  Those Hollister things they gave away to start with were really a NIGHTMARE. A guy at the place I bought supplies turned me on to Stomahesive 2-piece and then the Durahesive, which I love.  Wonder why they started us with such stuff – almost like trying to tell us it was gonna be bad.  And then in the hospital again, I got a sample of NoSting.  Just a sample, enough to make me feel like I was getting tortured when I had to go back to Skin Prep!  But after all these years, things are good and I shouldn’t complain.  It’s nice to watch the way some things change…and others don’t! libbydoo Dick Elliott <bud…@earthlink.net> wrote in message

news:37CF0652.166163E2@earthlink.net… – Hide quoted text — Show quoted text -> Hello Neil. Been an Ileostomate for 25yrs. About your problem: Been there done > that. My first device was a hollister karya ring. What a piece of junk. Tried > several other products till I tried convatec two piece 24 yrs ago. Still using > the same product. Have only had a few bumps along the road of life with > convatec. Works great for running, swimming, golf, biking, hiking, hunting, > camping, and 20 years of Karate, and life’s best nerve pill – sex. Only I have > to wear boxer shorts for sex. The only reason is to keep the damn thing from > getting in the way. If I remember in time i go get a closed pouch. But after 24 > yrs with the same women my memory slips. We had only one accident during our > intimate encounters and Jon was born 16 yrs ago. The pouch came off only > once……her fault…..to excited!!!!! Do not let your ostomy stand in the way > of a fun life. Look that little stoma in eye (not too close though) and tell it > you are in charge. Try the convatec. Good luck……Dick Elliott > Neil Buchanan wrote: > > Oh, feckin’ ‘ell could things possible get any worse. > > Anybody had this before: > > Around their stoma the skin has developed a rash and also a little ulser. My > > stoma nurse says that I have become allergic to the Dansac Invent 2 piece > > pouches that I use. This is bad cos  I really like them. She sent me some > > Orahesive powder for the ulser, some Chiron barrier cream and some Granuflex > > protective wafers things. Well the wafer lasted about a two days and sprung > > a very small leak. Now nothing seem to want to stick to my skin. Too much > > barrier cream, I dunno, but I only use a wee drop. The only thing that wants > > to stick is the bloody flange from Dansac that I’m allergic too, brilliant, > > just brilliant. However I fished out some old wafers from Salts and stuck > > that on then the flange on top of that. Not sure if it will stick. Not > > looking forward to work tomorrow. Anybody got any good suggestions before I > > go nuts. > > Neil > > (Illeostomist fur only 4 months and now everything is going pear shaped)

Response:

I have one solution…. when I had my ileostomy I was allergic to all the adhesives so I found spraying Benadryl spray (available in the USA) on the clean skin then letting it dry THEN applying the adhesive worked wonders! Most ET’s don’t advocate it but when your skin is raw, believe me anything that helps, even if unconvential, must be tried! BTW, I had the ileostomy for a year while waiting for the J pouch procedure to be completed. Lorilei – Hide quoted text — Show quoted text -> Anybody had this before: > Around their stoma the skin has developed a rash and also a little ulser. My > stoma nurse says that I have become allergic to the Dansac Invent 2 piece > pouches that I use.

Response:

Hi Neil: Have you thought of trying another brand for the two piece? I wear a two-piece Natura Convatec. Have you also tried the mini pouches for things like intimacy and swimming? You just snap off the larger pouch and snap on the mini.  You can get them at your regular medical supply store. Yentl’s Secrets: Jean Polnerow 26 Westtown Road Thornton, Pennsylvania 19373 1-610-358-2662 1-800-74Y-ENTL Jeanette Katt 777 State Rte. 29 Celina, Ohio 45822 1-800-749-3685 I use protective barrier wipes, this is a topical barrier between skin and tape and it’s supposed to be non-irritating and helps with the sticking.  It’s by Smith & Nephew.  It’s called Skin-Prep.   ***Kathleen***

Response:

You are not alone. I had such a bad reaction to stomahesive paste that I had to have my stoma moved to the other side! We didn’t figure out it was the stomahesive until 5 years later. You have figured out what is wrong and that’s the first step to getting things right. It will be hard to get things to stick until you get rid of the rash. Focus on that first and don’t worry about wear time. Once you get rid of the rash you can find a good fitting appliance and get longer wear time again. Barbara In article <ISzz3.435$N5.8923@stones>,   "Neil Buchanan" <njbucha…@njbuchanan.f9.co.uk> wrote: – Hide quoted text — Show quoted text -> Oh, feckin’ ‘ell could things possible get any worse. > Anybody had this before: > Around their stoma the skin has developed a rash and also a little ulser. My > stoma nurse says that I have become allergic to the Dansac Invent 2 piece > pouches that I use. This is bad cos  I really like them. She sent me some > Orahesive powder for the ulser, some Chiron barrier cream and some Granuflex > protective wafers things. Well the wafer lasted about a two days and sprung > a very small leak. Now nothing seem to want to stick to my skin. Too much > barrier cream, I dunno, but I only use a wee drop. The only thing that wants > to stick is the bloody flange from Dansac that I’m allergic too, brilliant, > just brilliant. However I fished out some old wafers from Salts and stuck > that on then the flange on top of that. Not sure if it will stick. Not > looking forward to work tomorrow. Anybody got any good suggestions before I > go nuts. > Neil > (Illeostomist fur only 4 months and now everything is going pear shaped)

– Barbara Skoglund (I) Barbara.A.Skoglun…@tc.umn.edu Sent via Deja.com http://www.deja.com/ Share what you know. Learn what you don’t.

Response:

Me again, thanks for all your suggestions. I will tried a few of them out. My stoma nurse is coming back next week so we will see if things have improved then. For now I went back to a Salts potective wafer then stuck the rest on that. Seems much better. I have some Coloplast samples as well so I may give them a try. Its just a right pisser when you like a product and then all of a sudden for no reason your body goes, "nope don’t like that, your not getting to use that any more" Another thing has anybody had probs with their ahem, tail end wound healing? I have to go back into hospital soon fur a wee op to stop things  form leaking, bleeding(not alot mind), and other such nasties. What I don’t understand is that all that was there has gone, what the heck is there to form sinusy thingies? Despite alll of these things I have never felt better and am glade I had the op so don’t worry out there, I’m actually very happy. Speak to you all later Neil – Hide quoted text — Show quoted text –

Response:

I assume from your post that your entire rectum was removed.  It is common for that wound to take a long time to heal.  Mine was months and months, and I’m generally a quick healer.  If you needed some corrective surgery, there must have been a fistula through to your abdominal cavity  which would be a two way passage, and a handy route for "nasties" to get in and cause more problems. Glad you are feeling much better, and hope the skin problems go away soon. Carl – Hide quoted text — Show quoted text -"Neil Buchanan" <njbucha…@njbuchanan.f9.co.uk> wrote: >Me again, thanks for all your suggestions. I will tried a few of them out. >My stoma nurse is coming back next week so we will see if things have >improved then. For now I went back to a Salts potective wafer then stuck the >rest on that. Seems much better. I have some Coloplast samples as well so I >may give them a try. Its just a right pisser when you like a product and >then all of a sudden for no reason your body goes, "nope don’t like that, >your not getting to use that any more" >Another thing has anybody had probs with their ahem, tail end wound healing? >I have to go back into hospital soon fur a wee op to stop things  form >leaking, bleeding(not alot mind), and other such nasties. What I don’t >understand is that all that was there has gone, what the heck is there to >form sinusy thingies? >Despite alll of these things I have never felt better and am glade I had the >op so don’t worry out there, I’m actually very happy. >Speak to you all later >Neil

Response:

Sort of true, Carl mate. I had a fistula from bowel to bladder, hence the op but I was sick of everthing and being only 24 I opted for a complete panproctocolotectomy.  I did have some absess things going on in the rectum area mind you, which could be the source of the minor trouble at the moment. However I’m on flagyl anti-bio at the moment and that seems to have dried things up slightly. See ya Neil Carl White <cwort…@gvi.net> wrote in message

news:3DWz3.3318$Fc.311315@news21b.ispnews.com… – Hide quoted text — Show quoted text -> I assume from your post that your entire rectum was removed.  It is > common for that wound to take a long time to heal.  Mine was months > and months, and I’m generally a quick healer.  If you needed some > corrective surgery, there must have been a fistula through to your > abdominal cavity  which would be a two way passage, and a handy route > for "nasties" to get in and cause more problems. > Glad you are feeling much better, and hope the skin problems go away > soon. > Carl > "Neil Buchanan" <njbucha…@njbuchanan.f9.co.uk> wrote: > >Me again, thanks for all your suggestions. I will tried a few of them out. > >My stoma nurse is coming back next week so we will see if things have > >improved then. For now I went back to a Salts potective wafer then stuck the > >rest on that. Seems much better. I have some Coloplast samples as well so I > >may give them a try. Its just a right pisser when you like a product and > >then all of a sudden for no reason your body goes, "nope don’t like that, > >your not getting to use that any more" > >Another thing has anybody had probs with their ahem, tail end wound healing? > >I have to go back into hospital soon fur a wee op to stop things  form > >leaking, bleeding(not alot mind), and other such nasties. What I don’t > >understand is that all that was there has gone, what the heck is there to > >form sinusy thingies? > >Despite alll of these things I have never felt better and am glade I had the > >op so don’t worry out there, I’m actually very happy. > >Speak to you all later > >Neil

Response:

Oh, feckin’ ‘ell could things possible get any worse. Anybody had this before: Around their stoma the skin has developed a rash and also a little ulser. My stoma nurse says that I have become allergic to the Dansac Invent 2 piece pouches that I use. This is bad cos  I really like them. She sent me some Orahesive powder for the ulser, some Chiron barrier cream and some Granuflex protective wafers things. Well the wafer lasted about a two days and sprung a very small leak. Now nothing seem to want to stick to my skin. Too much barrier cream, I dunno, but I only use a wee drop. The only thing that wants to stick is the bloody flange from Dansac that I’m allergic too, brilliant, just brilliant. However I fished out some old wafers from Salts and stuck that on then the flange on top of that. Not sure if it will stick. Not looking forward to work tomorrow. Anybody got any good suggestions before I go nuts. Neil (Illeostomist fur only 4 months and now everything is going pear shaped)

Response:

If it was me, I’d put just a spot creme on the ulcer, dust just the spot with stomahesive powder and cover it with a tiny duoderm patch. I’d have everything else clean and dry. Then, I’d get me an Eakin Seal and stick it on. Then, I’d stick on any old wafer I had handy and pray for the best. (Oh, yeah, and I’d wear a belt, too.) Best of luck.

Response:

Hello Neil. Been an Ileostomate for 25yrs. About your problem: Been there done that. My first device was a hollister karya ring. What a piece of junk. Tried several other products till I tried convatec two piece 24 yrs ago. Still using the same product. Have only had a few bumps along the road of life with convatec. Works great for running, swimming, golf, biking, hiking, hunting, camping, and 20 years of Karate, and life’s best nerve pill – sex. Only I have to wear boxer shorts for sex. The only reason is to keep the damn thing from getting in the way. If I remember in time i go get a closed pouch. But after 24 yrs with the same women my memory slips. We had only one accident during our intimate encounters and Jon was born 16 yrs ago. The pouch came off only once……her fault…..to excited!!!!! Do not let your ostomy stand in the way of a fun life. Look that little stoma in eye (not too close though) and tell it you are in charge. Try the convatec. Good luck……Dick Elliott – Hide quoted text — Show quoted text -Neil Buchanan wrote: > Oh, feckin’ ‘ell could things possible get any worse. > Anybody had this before: > Around their stoma the skin has developed a rash and also a little ulser. My > stoma nurse says that I have become allergic to the Dansac Invent 2 piece > pouches that I use. This is bad cos  I really like them. She sent me some > Orahesive powder for the ulser, some Chiron barrier cream and some Granuflex > protective wafers things. Well the wafer lasted about a two days and sprung > a very small leak. Now nothing seem to want to stick to my skin. Too much > barrier cream, I dunno, but I only use a wee drop. The only thing that wants > to stick is the bloody flange from Dansac that I’m allergic too, brilliant, > just brilliant. However I fished out some old wafers from Salts and stuck > that on then the flange on top of that. Not sure if it will stick. Not > looking forward to work tomorrow. Anybody got any good suggestions before I > go nuts. > Neil > (Illeostomist fur only 4 months and now everything is going pear shaped)

Response:

Question:

Group,     I am scheduled to have my wisdom teeth taken out on the 20th of July, I am also schedualed to have my reversal for my ileostomy on the 29th of July. Does anyone thing this is a bad thing to do?? Should I wait for the teeth to come out?? Could this cause any problems?? Thankx in advance!! — Jeff Goldband The Crohn’s and Colitis Meeting Place!! http://tor-pw1.netcom.ca/~popcorn/home.htm

Response:

I had a reverse situation.  2 months after my surgery I had lots of dental work.  I have old fillings and I had the back 2 teeth in each quadrant redone over a period of 4 days (Thurs., Fri., Mon., Tues.).  I was totally exhausted and asked the dentist how the freezing left the body and he said, even though it is a topical freezing, it is eliminated same as general anaesthetic.  Evidently a general takes awhile to work itself out of the body (a lot of work for the liver) so I suspect the dental freezing exaggerated what was still in my body.   My guess is that your dental work should not be a problem and it is probably better to do this work before the surgery.  It’s one less thing off your "to-do" list. – Hide quoted text — Show quoted text –

Response:

Jeff, I depends on how badly your wisdom teeth are impacted.  I’ve had three done.  Two of them were extremely painful.  One had to be dug out, and my face was swollen for days.  With that one, I was on continual pain medication for more than 2 weeks.  On the other hand, my husband had 2 removed and went back to work the same day.  His were very easy.  So I would ask your dentist what he anticipates.  If they’re very impacted, it might be better to wait till after your reversal heals up nicely before you undergo that kind of procedure. Hope this helps! Rita Sent via Deja.com http://www.deja.com/ Share what you know. Learn what you don’t.

Response:

Jeff, nine days should allow your teeth to heal if you don.t have any complications.Cherri – Hide quoted text — Show quoted text -Jeff Goldband wrote: > Group, >     I am scheduled to have my wisdom teeth taken out on the 20th of July, I > am also schedualed to have my reversal for my ileostomy on the 29th of July. > Does anyone thing this is a bad thing to do?? Should I wait for the teeth to > come out?? Could this cause any problems?? > Thankx in advance!! > — > Jeff Goldband > The Crohn’s and Colitis Meeting Place!! > http://tor-pw1.netcom.ca/~popcorn/home.htm

Response:

Question:

Austo-Mate  Edgepark Medical 800-328-3863

Response:

Carla: There are pics of the Austomate at: www.bcka.bc.ca/austomate.htm – Hide quoted text — Show quoted text -RJarrell wrote in message <19990608133155.24871.00001…@ng-da1.aol.com>… >Austo-Mate  Edgepark Medical 800-328-3863

Response:

STO-MED makes an ACTIVE GUARD, 1 800-814-4195 www.sto-med.com – Hide quoted text — Show quoted text -KidCandy wrote: > Hi, >         I am a 21-year-old female who has had an ostomy (for the second time) > for about 2 years now.  I recently joined a Taekwon-do club and was > wondering if anyone out there knows of some kind of stoma protector used > by people who play sports with ostomys.  Any info would be appreciated. > Please respond to me directly as I don’t visit newsgroups that often. > thanks, > carla barton

Response:

Hi,         I am a 21-year-old female who has had an ostomy (for the second time) for about 2 years now.  I recently joined a Taekwon-do club and was wondering if anyone out there knows of some kind of stoma protector used by people who play sports with ostomys.  Any info would be appreciated. Please respond to me directly as I don’t visit newsgroups that often. thanks, carla barton

Response:

Question:

Basically, the difference is in what part of the insides are brought out through the stomach wall.  A colostomy has a part of the colon (large bowel) brought out through the stomach wall.  An ileostomy has part of the ileum (the conecting piece between the small colon and the large colon) brought out through the stomach wall. Romane RLTaylor1 <rltayl…@aol.com> wrote in article <19990329170859.04494.00001…@ng-fq1.aol.com>… – Hide quoted text — Show quoted text -> Hi. > My mom has had a colostomy a year ago with not one single problem. Suddenly > last Friday she developed a blockage, possibly due to a hernia. Well, after > much consulting, the surgeon decided to fix the hernia, close (repair) the > colostomy, which is on the left side, and to place an iliostomy on the right > side for two months. Then, after two months, repair (undo) this. > Can someone enlighten me as to the difference between the two. > BTW, she is having surgery tomorrow at 3:00, and just tonight, she was placed > back on a "nutrition" bag. We are not sure whether or not she will need this > nutrition when she returns home. > Thanks for any help or info. > Robin T.

Response:

Hi. My mom has had a colostomy a year ago with not one single problem. Suddenly last Friday she developed a blockage, possibly due to a hernia. Well, after much consulting, the surgeon decided to fix the hernia, close (repair) the colostomy, which is on the left side, and to place an iliostomy on the right side for two months. Then, after two months, repair (undo) this. Can someone enlighten me as to the difference between the two. BTW, she is having surgery tomorrow at 3:00, and just tonight, she was placed back on a "nutrition" bag. We are not sure whether or not she will need this nutrition when she returns home. Thanks for any help or info. Robin T.

Response:

>just tonight, she was placed >back on a "nutrition" bag. We are not sure whether or not she will need this >nutrition when she returns home.

Well, hospitals routinely hook up an IV before doing much of anything, just in case and to serve as an easy route to administer meds–and if the gut is going to be tinkered with, the IV will provide nutrition and especially water without having to swallow it for a few hours or even longer.

Response:

Question:

  My original ET nurse told me that sitting on the toilet and emptying the pouch into the bowl was the easiest but I soon discovered that, like you said kneeling in front seems to be a lot easier!  It does seem a little wierd but how many people are going to see you using the bathroom?  Your spouse, children, etc?  They will understand.   As far as how often you should empty, Whenever you think.  You will get to know when you need to empty it, for me it is about 3 times a day at work, midmorning, after lunch, and again about two hours later. I have had my ostomy for about three years now and have only needed to go home twice from work becuase of a, ummm, personal problem.  :) Good luck with your new friend. On 12 May 1998 07:50:19 GMT, lg1…@aol.com (LG1111) wrote: – Hide quoted text — Show quoted text ->I’ve had my colostomy for only 2 weeks, and I’ve only been away from the ostomy >nurse for 4-5 days.  Now, I’m finding that I have so many practical questions >to ask.  So far, this news group has been invaluable. >First, what it the best position to be in when I empty the bag?  I’m finding >that if I kneel at the toilet bowl, then I can just empty it directly into the >bowl without creating big splashes, but it does seem weird.  What do other >people do?  To use a basin or anything else, would only seem to make things >smelly. >My other question concerns how often you empty the bag.  While I’m home, >whenever I notice that there’s stool in the bag, I empty it.  But I’ll be going >back to work in a few weeks, and I can’t imagine that it will be comfortable >letting the bag fill all day.  So, when I go to work, do I take a full set of >supplies, like flush bottles, etc? >Really, any help is GREATLY appreciated >Lee

Response:

In article <355869b8.2186…@news.foxinternet.net>, salat…@foxinternet.net (Denny Salatino) writes:

|> On 12 May 1998 07:50:19 GMT, lg1…@aol.com (LG1111) wrote: |> |> >I’ve had my colostomy for only 2 weeks, and I’ve only been away from the ostomy |> >nurse for 4-5 days.  Now, I’m finding that I have so many practical questions |> >to ask.  So far, this news group has been invaluable. |> > |> >First, what it the best position to be in when I empty the bag?  I’m finding |> >that if I kneel at the toilet bowl, then I can just empty it directly into the |> >bowl without creating big splashes, but it does seem weird.  What do other |> >people do?  To use a basin or anything else, would only seem to make things |> >smelly. |> > |> >My other question concerns how often you empty the bag.  While I’m home, |> >whenever I notice that there’s stool in the bag, ///snip/// |> >Lee |> ***************** |> Lee, if you put some paper in the toilet first, it will slow down the |> splashing bit.   I do mine in a standing position, but I take the |> appliance off to do it and empty it through the top or faceplate end. |> wipe that off and put it back on. if you use a 2 piece appliance you |> can do that. |> I have an Ileostomy and empty it when it is about 1/2 full or a little |> less. |> Denny. Hi, most people have what is called the standard bowl on their toilets, if you can afford it try to get an elongated bowl. I recommend it for the following reasons: 1) there is less water in the bowl and there is a dry area to aim    the contents that really restricts the splashing. 2) if you are skinny, it is very easy to sit back and empty between    your legs Now since I am classified as BIG, I sit on a chair in front of the toilet and empty into the elongated bowl, at the same time I empty I hit the flush, this gives a fast moving stream that is less likly to spash as well. — ======================================================================== Austin Hummel                            email: ahum…@siemens-psc.com Siemens Power System Control Phone: (612)-536-4403                             FAX  :  (612)-536-4947 ========================================================================

Response:

I have been back to work about a month.  I find that I need to empty right before lunch and again in the late afternoon.  I try to use the restroom about 1/2 before the lunch rush and then again before people start leaving.   I empty the pouch by sitting on the toilet the way I did before and letting it empty between my legs.  I use a water bottle with a little water before I start to empty so that it empties faster and cleaner.  I try to rinse the pouch afterward.  It seems to stop leaking and make it easier to empty the next time (the cuff is cleaner).  Personal choice . . . but I like it that way.  I have a package of stuff I take into the restroom with me in case I need to do repairs.  My water bottle is in it.   The people at my office know about the details of my surgery.  No one asks stupid questions and only one person has asked much in terms of detail.   I find that having the ostomy is simple compared to the UC.  

Response:

When emptying, I sit down more on the left side (I’m an ileostomist), have my legs apart and let the pouch hang down over the inside of the loo (so it doesn’t splash), if the poo is looking decidely sticky I put loo paper down first and aim straight for the water. Mark.

Response:

I have a colostomy since 9/96 and find it ‘empties’ usually right after breakfast and coffee. Since the stool is pasty, I usually place a paper towel in the waistband of my underwear while standing so nothing drips on my clothes and fill the bag with water from the sink to rinse and empty into the toilet. If you fill up during work and do not have a private bathroom there, I think it would be advisable to carry an extra appliance with you to change from. Good luck with going back to work.

Response:

- Hide quoted text — Show quoted text ->First, what it the best position to be in when I empty the bag?  I’m finding >that if I kneel at the toilet bowl, then I can just empty it directly into >the >bowl without creating big splashes, but it does seem weird.  What do other >people do?  To use a basin or anything else, would only seem to make things >smelly. >My other question concerns how often you empty the bag.  While I’m home, >whenever I notice that there’s stool in the bag, I empty it.  But I’ll be >going >back to work in a few weeks, and I can’t imagine that it will be comfortable >letting the bag fill all day.  So, when I go to work, do I take a full set of >supplies, like flush bottles, etc? >Really, any help is GREATLY appreciated >Lee

Lee, If your stoma is below the waistline you should be able to sit on the toilet as you always did to empty the pouch, just scoot back further on the seat so that there is room to lower the tail of the pouch between your legs, undo the clip, and ‘eject’ the contents. Some people even sit on the seat backwards to empty and find this way better.  It’s really just whatever works best for you. As for the emptying during the day, you will find that you pay less attention to it than you do now as time goes on. It will settle down and get into a kind of a schedule also, so you’ll kinda know when to expect to need to empty during the day.   As for the cleaning stuff, I started out carrying all that stuff around too, but soon got over thinking I had to "clean" the pouch out every time I emptied it.  I empty my pouch after my shower in the morning, then I wash it out with the squirt bottle a couple of times till it is nice and cleaned, then I add the M-9 drops, close it up and I’m good till it needs emptying again, say in the afternoon. But at that emptying I just empty and clean the inch at the top that extends beyond the clip, I clean with wet-ones when I’m at home, and with toilet paper when I’m in a public restroom.   I now only carry with me a spare pouch, a spare clip, and a tiny bottle of M-9 drops which I add to the pouch after EACH emptying, they work!!! Try to stay as natural as you can in your bowel habits at work or at home. In other words, if you needed to relieve yourself before the ostomy surgery, what did you do? You just went to the bathroom, right? Did you clean way up into your rectum? Well, I never did either, so I figure the pouch is now my rectum and if I start out each morning with a clean ‘rectum’ that is good enough. It will all start to be second nature to you soon and you’ll find it’s just not that big of a deal if you don’t let it be. Have a great day, Joy

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Hi, LG1111, I refer my learned friend to a message from LG1111 to All on 12/05/98 L> First, what it the best position to be in when I empty the bag? Whatever you feel most comfortable with – you’ll find your own way.  I don’t know whether you’re a him or a her, as Lee can be either, but as a man I stand at the toilet bowl as if I were having a pee, open the clip and let my output drain into the bowl. I sometimes put some paper into the bowl to minimise splashback.  I know some folk kneel, but I wouldn’t find it comfortable.  A also know a lady who carried a jug with her. She empties into the jug, pours from jug into toilet bowl, and rinses the jug under the flush, with a final rinse in the sink. I could see myself doing that in my own bathroom, but not in a public restroom! b…@craybbs.co.uk Bill Hayles.  Sysop of The Cray BBS http://www.craybbs.co.uk 0181 300 5971 & 0181 302 7250

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Well I am back from surgery *its been three weeks today* and things are going well.  I’ve got a bunch of supplies and I have been using the two piece system by convatec so far with a great deal of success.  I personally sit on the toilet and empty the appliance but my stoma is placed rather low  (which is really great for me with clothes).  To avoid splashing (as most people have suggested inthe past) I just drop 3 or 4 pieces of kleenex or toilet paper in the bowl and things are fine.  I was just curious how many people use a flush bottle?  As far as frequncy I empty about 3 times a day. morning noon and just before bed.  But of course I am still on the low residue diet and my intake isn’t too high.  I can see needing to empty more frequently as my appetite increases.  Most people have told me that about an hour after they eat they get a great deal of output and need to empty.   MAybe my system is still whacked out but I find that I don’t get much output until 4 or 5 hours after I eat.  Some of my friends with ostomies think my system is weird but *Shrug* that’s where I am at. Just want to thank everyone for their support.  I am surprised how fast I have adjusted to rarely going to ehe washroom.  I thought I Would have a difficult time adjusting from the persepective that pre-surgery the bulk of my thought life was where are teh washrooms..do I need one, what is my stomach doing etc.etc.  I feel so much calmer now.  It’s as wonderful as I was expecting it to be.  As I have said before….I wish I didn’t have to have an ostomy but the life it is now letting me live is wonderful!!! Chris – Hide quoted text — Show quoted text -In article <1998051207501901.DAA18…@ladder01.news.aol.com>, lg1…@aol.com (LG1111) writes: >I’ve had my colostomy for only 2 weeks, and I’ve only been away from the ostomy >nurse for 4-5 days.  Now, I’m finding that I have so many practical questions >to ask.  So far, this news group has been invaluable. >First, what it the best position to be in when I empty the bag?  I’m finding >that if I kneel at the toilet bowl, then I can just empty it directly into the >bowl without creating big splashes, but it does seem weird.  What do other >people do?  To use a basin or anything else, would only seem to make things >smelly. >My other question concerns how often you empty the bag.  While I’m home, >whenever I notice that there’s stool in the bag, I empty it.  But I’ll be going >back to work in a few weeks, and I can’t imagine that it will be comfortable >letting the bag fill all day.  So, when I go to work, do I take a full set of >supplies, like flush bottles, etc? >Really, any help is GREATLY appreciated >Lee

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Way to go Chris.  What a great attitude you have.  Keep up the good spirits and I’m sure you will be just fine. Warm regards, Jim

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I’ve had my colostomy for only 2 weeks, and I’ve only been away from the ostomy nurse for 4-5 days.  Now, I’m finding that I have so many practical questions to ask.  So far, this news group has been invaluable. First, what it the best position to be in when I empty the bag?  I’m finding that if I kneel at the toilet bowl, then I can just empty it directly into the bowl without creating big splashes, but it does seem weird.  What do other people do?  To use a basin or anything else, would only seem to make things smelly. My other question concerns how often you empty the bag.  While I’m home, whenever I notice that there’s stool in the bag, I empty it.  But I’ll be going back to work in a few weeks, and I can’t imagine that it will be comfortable letting the bag fill all day.  So, when I go to work, do I take a full set of supplies, like flush bottles, etc? Really, any help is GREATLY appreciated Lee

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On 12 May 1998 07:50:19 GMT, lg1…@aol.com (LG1111) wrote: >I’ve had my colostomy for only 2 weeks, and I’ve only been away from the ostomy >nurse for 4-5 days.  Now, I’m finding that I have so many practical questions >to ask.  So far, this news group has been invaluable. >First, what it the best position to be in when I empty the bag?  I’m finding >that if I kneel at the toilet bowl, then I can just empty it directly into the >bowl without creating big splashes, but it does seem weird.  What do other >people do?  To use a basin or anything else, would only seem to make things >smelly. >My other question concerns how often you empty the bag.  While I’m home, >whenever I notice that there’s stool in the bag, ///snip/// >Lee

***************** Lee, if you put some paper in the toilet first, it will slow down the splashing bit.   I do mine in a standing position, but I take the appliance off to do it and empty it through the top or faceplate end. wipe that off and put it back on. if you use a 2 piece appliance you can do that. I have an Ileostomy and empty it when it is about 1/2 full or a little less. Denny.

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Unless the contents of your bag are going to remain liquid you may find using a closed pouch better than a drainable one, I found as a very busy person at home and work that a two piece appliance is also better as changing becomes simpler. Regards, Martin Hasker. – Hide quoted text — Show quoted text -LG1111 wrote in message <1998051207501901.DAA18…@ladder01.news.aol.com>… >I’ve had my colostomy for only 2 weeks, and I’ve only been away from the ostomy >nurse for 4-5 days.  Now, I’m finding that I have so many practical questions >to ask.  So far, this news group has been invaluable. >First, what it the best position to be in when I empty the bag?  I’m finding >that if I kneel at the toilet bowl, then I can just empty it directly into the >bowl without creating big splashes, but it does seem weird.  What do other >people do?  To use a basin or anything else, would only seem to make things >smelly. >My other question concerns how often you empty the bag.  While I’m home, >whenever I notice that there’s stool in the bag, I empty it.  But I’ll be going >back to work in a few weeks, and I can’t imagine that it will be comfortable >letting the bag fill all day.  So, when I go to work, do I take a full set of >supplies, like flush bottles, etc? >Really, any help is GREATLY appreciated >Lee

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Question:

You can also find links from ConvaTec’s web site (www.convatec.com). Infoseaker

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Hi, all… I called the UOA this morning to obtain a comprehensive list of ostomy support organizations (ORG, TEL, NET ADDRESSES, ETC. and a one-or two-line description of what the group or organization DOES), and was told they didn’t have any such document. (!) If anyone here has a decent list of organizations they’d be willing to share with other ostomates [see thread, "Producer Seeks Advice," on this NG) for a video program end-scroll, please e-mail to me at shelr…@erols.com.  The program is for "newbies." Thanks in advance. Best, Mike

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shelr…@erols.com (Mike) wrote: >Hi, all… >I called the UOA this morning to obtain a comprehensive list of ostomy >support organizations (ORG, TEL, NET ADDRESSES, ETC. and a one-or >two-line description of what the group or organization DOES), and was >told they didn’t have any such document. (!) >If anyone here has a decent list of organizations they’d be willing to >share with other ostomates [see thread, "Producer Seeks Advice," on >this NG) for a video program end-scroll, please e-mail to me at >shelr…@erols.com.  The program is for "newbies."

Take a look at Kerry Keel’s excellent web site at: http://kerrypages.ro.com/Pouchclip/ which is a great resource in itself and also has a large number of links (http://kerrypages.ro.com/Pouchclip/links.html) to support organizations etc. Regards, Robert James.

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